Journal Entries
wasted...
Posted Sep 26, 2019
Time, that is. and money, too, no doubt 
Hospital appointment yesterday.
Got to it, and then found out what the appointment was for... no test, no scan, no bloods, just an app with a nurse, in bone clinic.
"How many times have you fallen recently?" 
"how many bones have you broken?"
never, and none whatsoever, of course, but. really.
So, the vast vast majority of people with osteoporosis, and osteopenia, are elderly, very elderly, and useually very unsteady on their feet, but. really?- Nope, I look like none of these 
observent this nurse. 
Nurse then says how they want to do a repeat blood test on me, repeating the one from last year, on bone turnover. Which is fine with me, although as soon as she starts mentioning it, I begin thinking they might have wrote to me beforehand.
Because, its a fasting blood test, that has to be done early morning, and for which I must withhold taking some of my suppliments, namely calcium, until after the test.
So. I can't do the test whilst there as it is nearly 4 PM, and I'm not in the fasted state.
C O M M U N I C A T I O N 
So. a complete waste of time, nurse did not examine me, did not give me the results of the test I had a year ago. and, as I wasn't fasted, and as it was too late in the day I couldn't have the blood test.
No advice about my fractured spine, although I did try asking her, in terms of exercise with it...
She did mention again my needing medication at some point; again she mentioned the drugs I've told them I refuse to take.
Head. wall.
In otter news my sleep is terrible again, so I'm re-trying taking melatonin, which I'm not sure is helping; last night took some, and slept, maybe nearly 2 hours in total. 
Going to buy a new mattress in case that helps.
In otter otter news. Still not resolved the misprescription of my medication by hospital, so not sure yet If they'll fix in time for my next testosterone injection. - officially easier now for me to precure my medication on the black market - but we did go to GP surgery yesterday, to attempt sort out the mess-up manually and without Dr intervention as Dr can't intervein without getting it wrong or incorrect 
New clinic app with endocrinology, at end of October; I'm now on the final consultant at the hospital they have left. all the otters I've seen there have subsequently left the hospital, cept one, who's retiring soon.
I'm giving up going gentle on the consultants. so this one might not last as long as the others. 
Discuss this Journal entry [8]
Latest reply: Sep 26, 2019
Administration
Posted Aug 29, 2019
7 weeks until my next testosterone injection. 3 weeks since the last one. 3 weeks of administrative 
ups, as the hospital fail to correctly write a letter to my GP.
Letter 1; tells GP I have an injection every 12 months.
Letter 2, following E-Mail exchanges between me and specialist nurse, Dr re-writes letter, to say 12 weeks. Dr fails to send letter, only updates it on online hospital MyChart account thing.
Now writing again back to specialist nurse, to try persuade the Dr (who I've never seen), to
a) look at my hospital records,
b) acknowledge I'm a (sort of) human, and that aafter 4 years of blood tests, my interval between injections is set at 10 weeks, not the 'default 12 weeks).
C) remember a letter needs to be received by the intended recipient, so, oddly, has to be sent to them 
William has also been spending the morning trying to sort out a future appointment of his own at hospital, for a regular six--monthly scan he has,- they'd forgotten to book it, but had requested it - judging by his nurses E=-mail reply, this up, had extended to not just him, but every other patient in the entire department 
Its astonishing anyone ever walks out alive from a hospital
In otter news, I got 4 hours sleep last night 
first sleep for four nights
Discuss this Journal entry [2]
Latest reply: Aug 29, 2019
100%
Posted Aug 26, 2019
100% mental and 100% manual handling. results that is, for the courses to do with work in otter news, now studying for my fitness instructor gym based, course, albeit without the course manual as they can't seem to provide it to me accessibly... so I'm just learning my way through the course silibus… 
already seem to be getting over pass mark on past exam papers, without having studied it all yet 
in otter news, its too hot for me to exist again. melting cooked a massive curry last night 
Discuss this Journal entry [3]
Latest reply: Aug 26, 2019
war.
Posted Jul 31, 2019
Everyything seems war at the moment. apparently the uk has declaired war with Europe, well, I assume that is the function of calling it a war cabinate, for 'sorting out brexit' 
just a pity the sorter-outer's, couldn't organise anything if they tried.
In otter news, oncology clinic appointment today, I'm on once-yearly check-ups now, for oncology, so first for a while. We've already done the bloods they requested, whilst I was in hospital last week, for the cardiology check-up. Cardiologist was rather helpful; also asked if I wanted any other bloods done whilst she was putting her's on to the 'system'- oncology bloods wehre already there, so she added the heart-related bloods, and I asked her to throw in electrolytes, TSH, T3 and T4 (thyroid). - Thyroid results show that without medication my TSH is normal, and T3 and T4 are low; but not very* low; the active one, T3, in particular is higher than it was whilst I was on medication
One of the main gym PT's has declaired war; a few weeks back I did the squat challange; just body-weight squats; I could do 56 in 60 seconds. The an ex-pro rudgby player, has only gone and done 57.
OK. war. I'm practising for 60 squats in 60 seconds, and I'm so close now I think.
Additionally, because winning isn't enough; I need to crush him at the same time; I'm perfecting single leg squats; also called piston squats; but using my ninja like balance, doing them with no support just standing on the floor - I can now so nearly get parallel on both my left and right legs. - I'm pretty sure he won't have my ninja balance and composure to do them - of course I've been practising them at home, whilst wearing a dress, so do them like a single legged curtsy natch. 
The otter outcome of the meeting with cardiology, is they are going to start investigating the operation I'll eventually need for my enlarged aorta; current thinking is, that, due to my hormone treatment, namely steroids, plus my osteoporosis/osteopenia, I'll probably not be able to have the operation, which, of course, means, eventually just dieing from it - but we will see what their surgin says/comes back with.
Discuss this Journal entry [1]
Latest reply: Jul 31, 2019
Break.
Posted Jul 18, 2019
As in a break/holiday away, not a misfortune with my leg on the BoSU
Back Sunday. Visiting a beer festavil Friday, and hoping to catch up with one or two friends whilst there on Thursday, Saturday nights 
- will be interesting now, with my mega-clever watch, to see just how far we do walk whilst away; a lot I think, but now we'll know - I tested the step tracker the other night; I counted 100 paces; the watch got it spot on, as 200 steps (it counts each foot moving forward as one step, not as I thought it might, by each pace; just counting one leg) 
Most steps to date, just 'ordinary walking about' whilst here in Cambridge, is 18000, though that was a day we walked out to the university sports ground/gym, plus did ordinary walking, I'm thinking we oughta hit over 20000 steps each day we're away; heck walking to the rail station here, oughta be about 3000 steps, and that's 'no distance', well, about 2 miles I guess from here 
right, must finish packing, and then search the fridge for things we must use up before we go, 
Discuss this Journal entry [3]
Latest reply: Jul 18, 2019
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