A Conversation for Ask h2g2
So, where is everybody?
2legs - Hey, babe, take a walk on the wild side... Posted Mar 21, 2015
I've not been 'in the water', sea or pool for so long - Not even allowed to go to a pool now because of risk of infection mind.... - hot baths ahve to suffice instead!
I've been... drinking jasmine tea.... and experienceing synesthesia which is a new one for me... I didn't realise you could 'develop' it... though I always sort of had it, in some things/way but... now... I don't think I can face any more tea tonight... - not ruled out a for later, mind...
So, where is everybody?
Still Incognitas, Still Chairthingy, Still lurking, Still invisible, unnoticeable, missable, unseen, just haunting h2g2 Posted Mar 22, 2015
Getting back into doing the 3D art work..Forgotten how much fun it is to play with Bryce.Plus my son bought me Grim Fandango remastered for Mother's Day.So not visiting as much.Helps to take my mind off food as well.
It will have to do until I've seen a specialist about my seriously degraded thumb joints leading to cortisone shots and longer periods without pain.Then I can draw and paint again..hopefully.
So, where is everybody?
Baron Grim Posted Mar 22, 2015
I found my original Grim Fandango disc the other day. I need to see if my laptop will play it. It does play my American McGee Alice discs. But from what I've read, Grim Fandango is notorious for incompatibility.
So, where is everybody?
2legs - Hey, babe, take a walk on the wild side... Posted Mar 22, 2015
its hot. its cold. its hot its cold. - sympathsising with menapausal women everywhere and trying to figure out if its my chemo or the Addisons steroids, making me have hot flushs, and a really narrow 'palatable' temp range
no chance of sleep...yet.... too... bleh, and brain awake... - going to vacate the bed, and do some wildlife/ecology work; freeing Guinness into their natural environment/habbitat, of my stomach, then maybe sleep will be more likely
So, where is everybody?
2legs - Hey, babe, take a walk on the wild side... Posted Mar 22, 2015
I just ran out of steam last night... didn't get to free the guinness from the fridge... decided sleep was a better option, and so cleared some space amongst the plethra of plush animal teddys in my bed, crawled in.... and now its back to morning... and caffine!
So, where is everybody?
2legs - Hey, babe, take a walk on the wild side... Posted Mar 22, 2015
feels like, I'm literally 'living' off caffine thesedays!- just plucked up the courage to clean and steralise the kitchen....... even got to mop the floor at last!- just about got me to the 'oh, I'm about to pass out' stage ; so time for a cuppa and a sit down, before I go tackle the task that is the bathroom cleaning/steralising and then getting my bedroom tidied, swept and cleaned.... - well, housdwork can get calssed as exercise , for me, at the oment, as far as I'm concerned.... and exercise has to be good...r ight....
So, where is everybody?
Still Incognitas, Still Chairthingy, Still lurking, Still invisible, unnoticeable, missable, unseen, just haunting h2g2 Posted Mar 22, 2015
Just had a lovely liver,bacon and mash dinner down the village and then went for a long walk hoping to see the Theodore Roosevelt aircraft carrier moored in the Solent 'cos it's too big for Portsmouth Harbour.It wasn't there then sadly.
It's real life that's interfering with my online life..
So, where is everybody?
2legs - Hey, babe, take a walk on the wild side... Posted Mar 22, 2015
me tooo; can't see why I can't have my laptop with me... on the net, whilst I'm recieving my chemo infussions..... then I could spend more time online
housework nearly done keep having to take breaks which slows things down.... - getting closer though.... bit by ti.... bit... to.... the Lush bath bomb and bath melt - I've even got a clean enough bath to use now mind.... the bath's still too damn small.... and the bathrooms too damn small to take a bigger bath - so need a bigger house so I can have a bigger bath... so I can... spend more on bath bombs another cuppa and... then the final slog to make it to pampering myself time; upstairs to mop, bathroom/bedrooms/stairs, then a very quick hoover down here... then... actually... probably oughta try not falling asleep in the bath I might spill my beer... <whistle. so tempted to take a beer into the bath.... that's ... just... so.... sjilly an idea.... and, aftearll one is ment to do so with but... I really dont' like anymore... and.... a can of Guinness, in the bath, before 6 PM... taht's.... just... so tempting but probably not a good idea... oo. time to take more drugs...
So, where is everybody?
Baron Grim Posted Mar 22, 2015
Well, I notice that my advice regarding went about as well as my advice regarding CO/smoke alarms, so I'll just shut up.
So, where is everybody?
2legs - Hey, babe, take a walk on the wild side... Posted Mar 22, 2015
I've cut down!- that's a start! I'm still less than two months from quitting smoking cold turkey! and.... ; there's a bit of other stuff going on #ATM! - heck I'm switching to jasmine tea earlier in teh day too - last night was good sleep; the teddy's are helping me sleep better... err. seriously.... Partly as they're kinda like cushions pillows too, and I'm able to use them to ... realign bits of me that ain't straight, lie my back, and suport bits that are in pain.... and push hard against to help ease muscle pain etc I.... if i give up coffee, and cafinated/Indian tea, do it has to take a long while before I notice... improvements like? I mean... maybe I could try it one day soon... =- today I had to be awake; house was so dangerously dirty; as I'm in my lowest immune system point, days 7 to 14 ATM at least the front floor doesn't crunch underfoot now, and the bathroom is... clean enough to use the bath and I've got a steralised kitchen... for the time being at least - caffine was the only thing forcing my body to do that cleaning today trust me! I'm not ignoring you ... I'm just.... I'm... damnit... I had a stroke/haemoridge only a ... dunno. can't remember... month or two back too all things considered.... I think I'm doing OK just now I'm so gona have a guinness to drink when I'm in teh bath, after dinner...
So, where is everybody?
Baron Grim Posted Mar 22, 2015
No worries. You seem to be handling a very difficult collection of adverse situations better than most folks would.
Many folks fly apart if the grocer doesn't have their favorite flavor of fruit juice.
So, where is everybody?
paulh, vaccinated against the Omigod Variant Posted Mar 22, 2015
How much more chemotherapy will be needing, 2Legs?
So, where is everybody?
2legs - Hey, babe, take a walk on the wild side... Posted Mar 22, 2015
I want.... as much chemotherapy as is needed........ and then a little bit extra... for good lucky....... the cytotoxic drugs are just so* yummy
can't wait until Thursday... lovely red goo.... vinblastic... dicarbazine.... adrenasine... err.. whetever they are
theoretically; I'm booked in for 6 cycles; each cycle is two influsions; 12 infusions in total; then some loverly radiation for after that
ue now to have an earlier than planned PET scan; to re-stage the lymphoma; as its... well, it vanished within a fortnight, from under the armpit; the tiny tiny ones under my collar bone, can't be felt from the surface; so I've and the consulttants no idea, what they're doing; but both me, and the consultant can't palpate/feel a thing under my armpit no more so.... -
A PET scan, unlike CT can be used to ... determine treatment course/length/clinically etc,,, I was origionally gona have a CT scan, which won't do that... when the consultatnt said he thought I should have a PET last time... I nearly cried - perhaps optamism on my part but... there is a chance.... if its looking good, and stuf has vanished (and nothing else popped up in the meantime), that there may be a reduction in teh chemo course
but. if not; they can bring it on. add another 12.... 24... whatever chemos... I've decided.... I can melt to pieces mentally; no one seems to ntoice anyhow really but, physically... I can soak it up... thus far (touch wood) as much as is needed... and then a bit more... just for luck no prlbme problem <towel:
afterall; the longer chemo goes on for; the more chainmail I'll be wearing! which reminds me; must chase up where my chaimail chainmail slave anklet has got too... thought taht oughta have arriaved - I can't really order up any more chainmail... until I've got the last lot - the doctors can fight my cancer with cytotoxic agents, and radiation; I'm fighting it with tea, chainmail, and total outsanity
-- just wondering at what Point I should think about booking myself in for the post-chemo/radiation psychotherapy.... seriously - mind... it'd have to be a nuts shink who'd take me on... my background level of sanity to start with wasn't high;
I've never been entirely convinced I didn't die, or didn't just remain in a coma, in 1994.... I recall before the coma..... I can't really recall coming out of it.... and.... the perspective on the universe around me, was never the same after htat..... all sort of never quite in focus... although a lot of it, since semeed quite real...; well drams dreams can seem real... so... I've yet to find convincinsing evidence that I'm not still in a aoma... coma....
of course... having just had a simular thing again, wtih the fit/stroke/haemorridge.... I'm yet again reminded that I'm not entirely convinced this is reality. - maybe part the reason I tackle the universe and life in general with.... a certain lack of respect for norm and reality
it does... seem kinda real though... especially the bits when I'm tied up being... well... quite...
and... the beer... does taste kinda real... I think...
as I may have mentioned elsewhere; it won't be me at the end of it... it'll be 2legs I think either 3.0 or 4.0; not sure which version we're on next invent... reinvent.... surreal... re-surreal I know my brains still recovering at the moment, from the stroke/haemoridge/fit/grand mal seisure...; I know this... as.... during chemo I've been re-training it, in a trick I picked up in recent years; re-experiencing senses as other senses; basicaly my trick of converting pain to colours. ; its... err.... useful given... ones passtimes
and... now its a handy pain control technique, which means I'm not going to be taking any pain meds, despite, already, almost near constant low-level pain in my body; currently its wizzing over the surface of my skin, as a rainbow; mainly bright coours at the moment... reds... greens, yellow... blues... turquise..... purple... orange... I don't even know the names of some of these colours... they're pretty...
and... - it would appear; having started re-learning, or reapplying this technique, at a moment in time whilst my brains is.... recoering and growing new tissue/repairing itself; I'm developing synethesia; I'm just starting to experience colours for taste too which is... kinda fun - jasmine tea, in particular is a lovely set of reds and oranges and yellows
by the end of chemo...... - err... lets just say, ther e are other things one can convert senses too... sounds to colour is common, pain to colour, less so, but is the one I can do, taste to colours, etc., etc., and I can also convert pain too... something else - and even without consciously trying now, a needle say for taking bloods etc... is... seriously... weird... and fun to boot
I make my own weird... its better that way...
and. talking of weird. I just measured up some teddy bears; for slave collars... seriously
Kinda planning/hoping though, the chemo will be all over, more or less, come end of summer but... if not... it isn't... it'll take.... as long as it takes... and, in the meantime.... damnit! - guinness time
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So, where is everybody?
- 141: Florida Sailor All is well with the world (Mar 21, 2015)
- 142: bobstafford (Mar 21, 2015)
- 143: 2legs - Hey, babe, take a walk on the wild side... (Mar 21, 2015)
- 144: Still Incognitas, Still Chairthingy, Still lurking, Still invisible, unnoticeable, missable, unseen, just haunting h2g2 (Mar 22, 2015)
- 145: Baron Grim (Mar 22, 2015)
- 146: 2legs - Hey, babe, take a walk on the wild side... (Mar 22, 2015)
- 147: bobstafford (Mar 22, 2015)
- 148: 2legs - Hey, babe, take a walk on the wild side... (Mar 22, 2015)
- 149: paulh, vaccinated against the Omigod Variant (Mar 22, 2015)
- 150: bobstafford (Mar 22, 2015)
- 151: 2legs - Hey, babe, take a walk on the wild side... (Mar 22, 2015)
- 152: Beatrice (Mar 22, 2015)
- 153: Still Incognitas, Still Chairthingy, Still lurking, Still invisible, unnoticeable, missable, unseen, just haunting h2g2 (Mar 22, 2015)
- 154: 2legs - Hey, babe, take a walk on the wild side... (Mar 22, 2015)
- 155: Baron Grim (Mar 22, 2015)
- 156: 2legs - Hey, babe, take a walk on the wild side... (Mar 22, 2015)
- 157: Baron Grim (Mar 22, 2015)
- 158: paulh, vaccinated against the Omigod Variant (Mar 22, 2015)
- 159: 2legs - Hey, babe, take a walk on the wild side... (Mar 22, 2015)
- 160: paulh, vaccinated against the Omigod Variant (Mar 24, 2015)
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