h2g2 The Hitchhiker's Guide to the Galaxy: Earth Edition

There are Gene Therapy experiments trying to start up in the US for the immune dysfuction of CFS, ME. HOPE! National Jewish Center for Immunology & Respiratory disease. They diagnosed me in the 80's #354 I believe in documentation of world cases. There are still researchers there working on our behalf. I have been in several studies there over the years.

Thanks for Info. Being one of the early diagnosis must have been quite an experience - those of us who come behind at least already have the benefit of the studies and information form those who were diagnosed earlier - if you see what I mean!

I try not to focus on possible future cures although I hope there is something out there. I need to feel there is something I can do now so in the mean time I have to manage my energy.

What sort of studies have you been involved in? how did they feel? I would be worried that I might inadvertantly make myself worse

I do believe balance is important. I would not be here without restraint (still difficult) and balancing mind/body/spirit. I get the most disturbed when I go through periods where it is hard to give to others. Studies were preliminary, lookin for something-anything. I was proud (along with others) to help emliminate the lazy,unstable,pouter of a personality profile. I do NOT look for a cure either. I understand your thinking , you must go on. I used to read every scrap available. It takes too much time and too much of a toll when its is BS. My lightning strike has caused more damage than anything, amoung other complications. I am a mixed bag!I try to support anyone that I come across with ME ,(CFS In the US)goes by about 50 different names.