A Conversation for Fabry Disease
Treatment
Danny B Started conversation Oct 30, 2001
Two different drug companies have recently produced treatments for Fabry disease. Both involve replacing the missing alpha galactosidase A with an artificial form of the same enzyme. Hopefully the treatment will be available on prescription very soon 
Treatment
amdsweb Posted Nov 7, 2001
Indeed so. I was involved in the research for one of the companies. I'm not saying which one, but its the one with the best product (and the shortest name) 
Treatment
Danny B Posted Nov 7, 2001
Well, by my reckoning, one has 8 letters and one has 9. Assuming you're not using generic names, in which case both have 14 letters. Am I close..?
Treatment
amdsweb Posted Nov 8, 2001
I was thinking of the drug company name - it is three letters long, starting in T, ending in T with a K in the middle 
Treatment
Danny B Posted Nov 8, 2001
That's all right then In my guise as a medical writer, I've written some of your educational bits and bobs.
Treatment
Danny B Posted Nov 8, 2001
I think the only one that's made it as far as the printed page so far is a short book called 'Fabry disease. Clinical manifestations, diagnosis and therapy', 'authored' by Beck and Ries, and I've also ghost-written an article about Fabry disease for Brady in 'Current Medical Literature'.
Treatment
Danny B Posted Nov 8, 2001
That's the one. Terrifying..? I must be on his good side - I've never had any problems working with him
Treatment
amdsweb Posted Nov 9, 2001
Did you go to the Lysosomal Starage Diseases symposium in Seville?
Treatment
Danny B Posted Nov 9, 2001
Sadly not 
Conference attendance for writers is dependent on drug companies deciding that the money they can make from the promotional material we write outweighs the cost of the writer's travel and accomodation. For Fabry disease, this doesn't seem to be the case. Maybe one day...
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Treatment
- 1: Danny B (Oct 30, 2001)
- 2: amdsweb (Nov 7, 2001)
- 3: Danny B (Nov 7, 2001)
- 4: amdsweb (Nov 8, 2001)
- 5: Danny B (Nov 8, 2001)
- 6: amdsweb (Nov 8, 2001)
- 7: Danny B (Nov 8, 2001)
- 8: amdsweb (Nov 8, 2001)
- 9: Danny B (Nov 8, 2001)
- 10: amdsweb (Nov 9, 2001)
- 11: Danny B (Nov 9, 2001)
- 12: amdsweb (Nov 11, 2001)
- 13: Danny B (Nov 18, 2001)
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