h2g2 The Hitchhiker's Guide to the Galaxy: Earth Edition

Ah, yes, memory and medication. So far I haven't had problems worth mentioning in that department, but if I don't follow my daily routines I may sometimes have to think hard for a while until I am sure whether I have taken my meds or not. This usually happens when I'm travelling.

Maybe I should get some of those pill boxes for the different days in the week, you know, divided into morning, noon and evening. I'm not 61 any more, you know

your not? how old is ya then?

At the moment I'm theoretically still 38 years old. but basically since the seizure end of jan, plus the chmeo..... I'm now circa about 60 or 70 I think, physically, and still the same 17 or 16 year old I have been, since the age of about 13 <biggrin. I'll neer grow up mentially at least
Bit of a shock though, suddenly aging thirty years, overnight though I expect to regain some of the interveining years of semi-youth once treatment's done with and I can convoless a bit the affects on my mind are the wrose. worse. they, were never mentioned really, and some or all may still be connected with that seizure, or ongoing neurological stuff, that neurology don't wanna know about ; must think about trying to get re-refered back to neurology at some point; I'd kinda like to know if I did have a stroke, or a haemorridge, or not; no one has told me for certain, and the GP Drs notes, are, as he puts it supprisingly vague on the matter. - of course, in addition to the neurological affects of the stroke/haemorridge/fit on memory, and cognition, I've also probably got the affects of teh chemo-brain, which I certainly noticed creeping up during treatment, and, I gues, currently, possibly affects of being a post-menapausal, or just menapausal I guess, woman.

You'd think my body and or brain would be confused by my multiple illness and ailment and gender profile, but ... TBH I've just not got any energy left anymore to worry about anything... so I don't Its all so unreal anyhow... the last... what... firve five six months? they're plaing out within my conscious more like a dream than reality... = kinda handy when they wanna do hurty opperation stuff to me; I don't have to feel any pain, as I can know its all in a dream.

I'm tempted for when they remove the port from my chest, to request no anasetic at all. not even local. just so I can feel it. afterall I'm sure having a bunch of silicon tubing and a silicon ball thing, inside a metal case, removed from my chest can't hurt that* much... probably just like stubbing a toe or something

ginger tea now Spoke to William earlier, arrangemnets for what time he's coming back to mine....... ours... tomorrow. felt odd not having him here though I guess a bit ofspace of space to myself was kinda... nice ... nah, mainly just missing him I think but at least I made use of the time, got the curtains up, did laundry, and stuff

oo. talking of meds... must take melatonin ... err.. in about an hour I guess, depending what time I wnna sleep. gona try drop all the sleep med stuff, soon as radiation is over, don't want any more drugs than is entirely necessary; pretty sure I can reduce hydrocortisone, and then at some point, try make my adrenals try work again afterall, they were fine for twenty years, despite having no ACTH production from the pituitary to make them work properly... - I'll thenjust have to remember not to get cancer again, and I'll be fine I think on the cortosolhydrocortisone....

I still miss the universe a bit though. but I guess this unreality I'm living in is kinda nice too in its own, very odd and weird way.

I would have thought all kinds of s would have been interested in studying this complicated mix of conditions and stuff you are in and have been through. A fascinating playground for any holistic medicine man or woman I should think.

The interactions of all your different medicines alone is so worth a study, I would have thought.

Once you have energy enough for it, tell them to tell you as much as they know for sure and what they are suspecting.

You could become the center fold of The Lancet

nah. they're just uninterested in me. haemotology Dr jut wanted me gone, soon as my chemo finished; so I didn' teven get a follow up clinic after the final infusion; I just had to wing it, as went giving up strit hygine etc, - think I judged it about right; assuming I was ment to stop ultra hygine, etc, and stop taking temp to monitor for infection; no one told me either way.

Radiotherapy Dr, basically told me first time we met 'you won't get any sideaffects', which, to my ear, was his basically saying he doesn't want me to windge to him about any side affects.

Only Dr who behaves like an adult human, in a real universe is the endochrinology DR, who is actually the professor there; he's got a spcial interest in pituitary related stuff; which seems to be the bit of me which is screwed; sadly, he's of course really really busy, being the departmental prof etc; so appointments with him are eons apart - took four months to get my emergency hydrocortisone injection kit; which I cna't use. but, still not had pressure test on my adrenals, or anything... Luckily I'm the coolest person in the known universie, and in the unknown universe too, so I can be relaxed and so cool about it all. Afterall, I don't fear death; it fears me. so, I can't get overly worried about anything really anymore
if I can manage teh effort; the next two weeks I wanna try contacting various subsidary peoples, associated with teh oncology and haematology dept; try get some 'rebuild 2legs' help; fitness, perlipheral neuropathy, and maybe some psych stuff, perhaps. though I'm not sure I want to have a p psychiologist look at my mind; I think my 'normal' , I.E., pre-cancer brain was well outside the norm to start with; I only want a return to that 'norm', not some rediculus version of what a 'normal person' should be like; or they'll start messing about with my bits that make me me. - like for the male/female hormone thinggy; I want that balanced to my 'normal' not their version of what I shoudl be, as a biological male... that'd ... just be horrible

problem is; there isn't a doctor really, who'd cross over between my cancery bits and endochrine bits, and neurology bits, so... none of them has ever looked at the 'whole' as it were - well cept me...

You sound like you need to see DR Greg House M.D. (played by Hugh Laurie) mind you he would proba bly just diagnose lupas

Not far from the truth!; when they thought I had autoimmune Addison's, l lupus would not be unlikely! nor would diabetes, etc! - I did my Masters thesis on lupus genetics! - wierd is just one blood test away, kiddies, remember that

William's here. gosh. not realised how much I'd missed him, until h he turned up...

Went to pharmacy; they've got to order in my injectible hydrocortisone, from the manafacturers; put in repeat prescription form for viscotears - off to hopsital for radiotherapy in a couple hours... must go eat food!