h2g2 The Hitchhiker's Guide to the Galaxy: Earth Edition

no. really weird. weird with a capital 'weeeeeeeee'
I slept last night (weird enough in itself), and woke an hour before the alarm, at 9 AM OK, so the four pints of beer last night in the pub, and finishing off the open 3/4 full bottle of white wine in the fridge, probably contributed to the sleeping... but even so, alcohol often isn't strong enough on its own to induce sleep, unless combined in a entirely unrecomended way with tamazapan
so... got up... took 4 X 25 McG levothyroxin 9 (can't get the brand of levo I take in bigger sized tablets than 25 McG, and I can't tollerate any other brand of levo I've tried as they give me chronic diarrhea ) ,blush>
so, took that... let the sublingual B-12 disolve under my tongue, then swallowed the B-complex softgel tablet...
had coffee...
after about an hour after the levo, started cooking breakfast for W and me, (we had black pudding to finish it off ) oh, and I had a too with toast...
Took my 3 X 1 MG prednisolone, just before eating, then had more tea and took 3000 MG vitamine C with roseip and a multivitamine

Went off out.... towards the

OK. this is the weird. the really weee weeeee weeee weeeeeird weird...

At the grassy knol at the top of the road, were two people...... they were standing near each other, one a relatively old lady, the other a young man in a grey tracksuit.

they.... appeared to be dancing balett... balet... balat ballet

however.

on. closer inspection.

They were, making cooing dove noises at each other very loudly. and. well. they were. pretending to be dove's

so. went up to the bus stop.... got on a bus.

double decker bus

mother sitting with pushchair in the spot at the front that says its for disabled, the rest of the downstairs full...


so we go up the stairs. I virtually fall down the stairs. no one offers to give up a seat

got to hospital....


oo! floor three! a new department I've not been in before!!!! - I need a loyality card... I've visited nearly ever dept at the hospital now... neurology, neurosurgery, endocrinology, oncology, hematology, radiology, maternity, etc., etc.,

waited, not overly long, and had a bone density scan

operative seemed to really struggle getting a good scan/pic on my spine, and had to reposition me lots and lots of times, and then she struggled to find my hip too results to be sent to my GP an dth e new endo consultant I'm now under

came home, via the bus... and from the bus to home, went into the shops and got a few things, namely some bread rolls, na d fennel tea.

and now... I really need a nap its truely horrible having untreated hypothyroidism. the dose of levo I'm on, is sufficient to give me all the side effects of the revolting horrid drug, but none of the benifit of having raised T3 nad T4, as my levels are only vaguely hiher than they were before I started on the meds, but, of couse, back then, I was only hypo, not hypo plus all the horrid drug sideeffects.

must get on this week, and put together a document, listing all the relivent pappers published recently, on the issue, and highlighting the NHS, NiCE, british endocrine society guidelines on treatment of pituitary and/or hypothalamic derived (I.E., secondary) hypothyroidism, so I can teach my consultant why she's wrong and piont out the error in their inability to understand blood results, and interprit what they mean. Mind, still not sure levothyroxin will ever properly work for me, the drugs just make me feel so ill... guess I can go round the trial and error route again sometime with my pharmacist and try more differnt brands of the med, so to see if another is better than what I'm no... or I guess try go off script and source some NDT from the states, or see if I can get T3 only scripted here in this area or not

Ordered up repeat prescriptions online, to pick up this Friday, proton pump inhibitor, more steroids and levo, eye drops and melatonin I think this time <erm.


Oh, and got a random, slightly worrying phonecall this morning, just before we went off to hospital;

"hello, this is 'girls name', from hematology' (my brain thinking... but... they've not done any bloods recently or anything..... what the ...)

ahh; my GP had written to them, a while back, and they were phoning to make an appoitnment for me to be examined, and to assertain if the oedema is lymphoedema.... in oncology, so that is an app for next wednesday at hospital only two years of having oedema before I've gotten some reaction from the medical people

*does double take* Wait a minute ....... maternity????

yep maternity. It was one of the funniest moments during chemotherapy and radiotherapy...... getting an appointment through for a Ct scan.... in the maternity department of the hospital - I think one of the scanners elsewhere must have been out of action at the time...

and one thing I know.... - the maternity scanner has a soft badded bench! - I got radiated every day for threee weeks, on a cold, solid mental bench! - so unfair!

Oh, and I even got a stay in the hepatology ward, the day and few nights after the wedding... - I guess they didn't have any space elsewhere in the hospital, so I was on a ward full of dieing alcoholics! that was one of the loudest, scariest wards I've ever been on... - two people died I think in the few days I was there.... and kinda exciting, at 4 AM, when the guy in the bed next to me, is producing blood from every orrafice on his body - and has the crash team in about four times over the course of the night.... - thank heaven for IPods and seriously loud headphones!

No slepe last night. tried unsuccessfully twice over the course of today to nap, but can't. keep overheating, plus heart palpitations, plus the outbreak of spots on my chest is extra painful for some reason (assume the steroids cause these and they're nothing to owrry about, but as the Drs won't examine them, I'm only guessing.)

Really should try concentrate and put together the notes I want to write, and print out to take to the next consultant app in endocrinology. - clearly my talking to them doesn't work, so Ill write ti down... if only I can concentrate enough to write it. I think I'll threaten them again with legal action, and also with death.
err, not with their death, of course, that would be foolish I feel, but with my own death; basically "do soemthing about my meds, Or I'm going to stop taking them, as they're making me so ill; as I've told you this, its therefore your responsiblity and cause, if, by your inactivity to do something about my meds, I get ill from stopping them."... but, err, only worded proper if I can think well eough to word it proper

I think the body pain might be affecting my ability to sleep too, as its more painful laying down, and at least sitting up, I don't tend to notice the heart palpitations so much.

Think I'll go out and get drunk tongiht, so I can slepe.

I thought of you last night when my PVCs woke me up. It felt like one of the ventricles wasn't even working, locked either open or closed. That's just how it felt, I doubt that's what was actually happening. Anyway, while I was still in a bit of half sleep I voluntarily coughed a couple of times. It may have only had a psychosomatic effect, but it seemed to calm my PVCs down enough for me to get back to sleep. I'm starting to think my PVCs are rather like hiccoughs. I hate hiccoughs!

PVCS? don't think I know that one!

well, i did sleep last night waking at 9.... got up to use the loo, popped downstairs and took my first med, the levothyroxin, and went back to bed for another hour which made the med soak in a bit easier I think... (kinda tempted to maybe move taking the levothyroxin to nighttime, as it makes me tired and so ill, perhaps if I tkae it before bed, I'll sleep through the really acute feeling ill it makes me get ).

went up to pharmacy today, to pick up the repeat prescriptions I put in a few days ago online....

- we almoste needed a small handcart to carry back the bag of meds - and that doesn't include my nabido injections, or the Growth hormone




3 large boxes of eyedrops,
6 boxes of prednisolone (which I tidied up to make two boxes, each containing several strips of the med),
4 boxes of levothyroxin,
1 box of melatonin....

,erm> and no box of proton pump inhibitor tablets (the ant acid I now have to take for the side effects of teh steroids), so had to phone dr surgery, and William's now gone back to the pharmacy, to hopefully pick up the PPI.... can't recall what they're actually called... Lazospronole or something stupid I think

Really; when I'm on prednisolone all the time, you'd think it would save money and time, to just be given a jar of 1000 tablets once a year or however often it would be, rahter than all the individual boxes of 28 tablets - I take on average 5 MG, which is 5 1 MG tablets a day; but double or tripple up that dose if I'm ill say with a cold or the flue or an infection of any kind, so I can get through the tablets very quickly sometimes

checked n the pharamcy to make sure the levothyroxin are the right brand, whcih they were, mercuary pharma,

oddly, on getting home, notice the prednisolone are a differnt sized/shaped box, as they are a differnt make to the wockhardt make I normally et.... so might be interesting to see if having a differnt brand of the steroids makes much differnce, like it did for the levothyroxin - interestingly the brand of the prednisolone now, is a make who has also just been re-licenced to provide the levothyroxin too, in the UK, err, tello or something I think, so maybe I shall try their make/brand of levothyroxin some time, see if they make me less unwell than the mercuary pharma brand... The acuvis and wockhardt brands of levothyroxin made me so ill though, I'm a little reluctant to try another brand, now I've found mercuary pharma make is vaguely tollerable as it at least doesn't make me spend all day sitting on the toilet

Lansoprazol. I can't live without them. Have been using them for about 35 years now, I think. Would hate to be without them

ye!, Lansoprazol that's the one.... 30 MG tablet, one per day, before my evening meal, seems to stop my acid reflux, caused I think by the prednisolone.... - actually the acid thing may just be as a consequence of my condition, as I think for some reason not sure why, people with hypopituitarism or panhypopituitarism tend to have raised stomach/gastric acid secretion - which is also one way that absorption can be impaired in my condition; not onlly absorption of food, and nutrients, and vitamines therein, but also suppliments, and I assume also medication.... - plus I may or may not also have the penitious amemia, which the hospital keep forgetting I have, so haven't treated now in over two years - hence I take the sublingual B12 to help get my B12 up a bit higher than where it sits at the bottom of 'in range', but I do think I'm probably still anemic, and could do with iron supplimentation, by I want to try* and persuade the hospital or GP to actually do a complete iron pannel on me, before I supplimeent potentially unnecessarily - William went back to the pharmacy; they did have the Lansoprazol - it was a seperate prescription to my main repeats; so wasn't in the pile of massive bags full of medicaiton to be picked up! - William also went to the surgery, and asked them to ask the Dr, to put the medication on the normal repeat list of my meds, so next time it'll just come in the one massive bag with all the rest - too many drugs!

I take a 30 mg lansoprazol capsule every morning because gastric reflux due to a defect between the esophagus and the stomach. I have no idea about the proper medical diagnosis in English

But that's the least part of my problem anyway

I now what you mean - I've forgotten what the biggest one of my problems is ment to be now side effects of the drugs is the worse felt fine today on getting up,now I can barely move to walk and I think I'm just going to collapse back into bed, another day doing absolutely nothing as I'm too debilitated by the meidcation to move or stay awake