h2g2 The Hitchhiker's Guide to the Galaxy: Earth Edition

hospital appointment letter through today; electrocardiogram, middle January I think the threatening letter to endocrineology did some good... they appear to be ... actioing things at last

Now, the 23rd Dec could be revealing.... - Discover how much I've peed off the endo nurses, by how much my intramuscular injection nebedo (testosterone) hurts - lucky I cna't feel injections no more actually, is that even normal?: I mean, the IM injection I can't feel at all; cept after a while I feel the large volume of viscous fluid, just putting pressure between the sheets, mmuscle sheets of my glutis maximus - think I'll go for left buttock/hip this time, just for variety

Sounds promising

yeh... promising that something might happen, after I've threatened them with legal action, but very worrying that this does rahter indicate they only treat patients accoridn according to how bad an affect not treating the patient, has on them, rather than by any determination of clinical judgement and need... we'll see...

Very true. Squeaky wheels and oil and all that

I'm glad to hear that they are finally moving forward, even if it did take a letter to get them moving,
hopefully this is the beginning of them taking you seriously and doing their jobs!

yeh.... I hope that too next things probably in new year now, is t to get them looking more seriously at why the meds make me more ill than not taking them; especially why I react to the levothyroxin (thyroid meds) totally reverse; more tired when I take it and fatigued than when my thryoid bloods show my levels are so low that I should be really fatigued, yet, have more energy... - I suspect I don't handle T4 overly well, maybe have too much being converted in to reverse T3 rather than T3, though my T3 results do show I am* converting Also in new year I want to work with pharmacist and try differnt brands of the prednisolone as I know switching brands on the levothyroxin made a huge differnce... Still not convinced my steroid dose is right; medium dose seems worse for me; lower is better, but dangerous of course, but, then higher dose is better too, or so it seems, but of course higher the dose more risk of long term problems like developing diabetes, osteonecrosis and osteoporosis etc and it adds more to weight gain and oedma I think the more steroid oh, and gettin g the oedema sorted is stilla major thing, but the electrocardiogram is part of that really, to rule out entirely heart problems as a cause of it - of course the reverse can be true, as in the oedema can itself cause heart problems, and indeed heart failure eventually - should be starting the growth hormone injections soon, which oughta make a big differnce I hope, but that does intail the hastle of self injecting myself every day for the rest of my unnatural, plus having for the next eight months after starting it, to do a lot of documenting stuff, about it, plus lots of tests at hospital on it in my blood etc; as the eight month period is a trial period; if I don't show signs of improvement in certain criteria over that period, then the GH injections stop, as they're rather expensive (about £3K or more a year), and of course there isn't much point injecting onseself every day, for no purpose, if the thing isn't actually making any difference... - it oughta cause weight loss, improvement of bad fats in my blood, reduced heart disasee risk ( (people with panhypo die more easily from heart disease due to dysregulation of blood lipids ), plus should reduce in particular trunkal obesity (weird distribution of fat on my body that is truely hidious) plus, its ment to improve cognitive stuff, reduce social isolation and mental things but potentially causes carpal tunnel and some other stuff... oh, and it should improve bone density too