This is the Message Centre for 2legs - Hey, babe, take a walk on the wild side...

11/15. 22 Greys radiation.

Post 1

2legs - Hey, babe, take a walk on the wild side...

and. it sure feels like it in some ways.

swallowing is so painful. even just swallowing saliva.

makes wearing the death mask and being bolted to the metal table even more fun, IMO. didn't manage to sleep today during the irradiation. Mask felt strangely uncomfortable, due to having a hot flush, and with the neck/swallowing so painful.

Asked to see a Dr about the swallowing thing, wasn't one there who could see me. Technition mentioned the dietition, but no one suggested that as an option, so I didn't see them.

tried walking home. got so tired, part way back. had to stop at a pub for a pint, and to take hydrocortisone.
hormones and mood all over the place. in pub folded up my cane, and it wouldn't fold properly. so i threw it hard at the floor. and hit some sbloke at the bar smiley - laughsmiley - blushsmiley - erm
hydrocortisone and the sugars etc, in the beer, got me able to get the rest of teh way home.
I'm so pa clearly hypoglycemic at times, I think, but every time I mention it to a Dr they just tell me to shut up.

Seeing the Dr tomorrow, apparently about my throat/swallowing. - I'm not going to talk to him at all this time. he ignores me; only when William talked to him did he immediately put me into have the CT scan, follow up to the CT scan from jan that showed possibly a brain lymphoma. so as he won't listen to me, I can't see any point talking to the Dr myself.
Still waiting to hear back from the cancer nurse.
Still no follow up to chemo ending, err, however long ago that was now.
No letter or phonecall from endocrinology yet, regarding testosterone/oestrogen. etc.
i'll go along to the next four radiations because it'll annoy peple I like if I don't. but frankly the hospital has behaved so irrationally I can't be doing with any of it anymore. good job I can't swear on here.


11/15. 22 Greys radiation.

Post 2

Baron Grim

If your doctors aren't listening to you, you need to find someone who will. Have you looked into finding someone like a patients advocate? Can you ask for another doctor to review your case and hear your complaints? I'm appalled that your doctors are ignoring your symptoms.


11/15. 22 Greys radiation.

Post 3

Pierre de la Mer ~ sometimes slightly worried but never panicking ~

I agree. Something has to be done smiley - grr

smiley - pirate


11/15. 22 Greys radiation.

Post 4

2legs - Hey, babe, take a walk on the wild side...

I shall but perservere.... smiley - zen sorry... was a bit... a lot... hugely... menapausal earlier and very moddy and down smiley - blushsmiley - laugh seriously... smiley - snorksmiley - zen it'll all work out weird in the end... trust my words. I bought two blouses and a waistcoat this morning, afterall smiley - biggrin


11/15. 22 Greys radiation.

Post 5

Pierre de la Mer ~ sometimes slightly worried but never panicking ~

Well, that's something then smiley - biggrin

smiley - pirate


11/15. 22 Greys radiation.

Post 6

2legs - Hey, babe, take a walk on the wild side...

This blouse is gorgeous... so purple... and frilly and... even one of the radiotherapy technitions/nurses commented on it; its gort square buttons! smiley - wow - and the nurse even said how nice my new silver broach looks on it... (the silver roach was a charity shop b bargin too smiley - biggrin ) smiley - zensmiley - diva


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