A Conversation for Muscular Dystrophy

How Muscular Dystrophy effects me

Post 61

Elentari

I thought you'd want to be corrected! smiley - winkeye Bloody Latin spelling!

LW, I don't understand your comment "dunno" in response to my post. Was it unclear?

To clarify: The Post would like you to confirm to them persoanlly that yo are willing to submit your comments to the Post, as you said you would. All you have to do at this stage is post that you agree to this on the thread I linked to in post 48.


How Muscular Dystrophy effects me

Post 62

Elentari

Here is the link again: http://www.bbc.co.uk/dna/h2g2/alaba...ead=1467579&post=16997714#p16997714


How Muscular Dystrophy effects me

Post 63

Lord Wolfden - Howl with Pride

Frankly your post was unclear too


How Muscular Dystrophy effects me

Post 64

kea ~ Far out in the uncharted backwaters of the unfashionable end of the western spiral arm of the Galaxy lies a small, unregarded but very well read blue and white website


Terri, you can usually tell what's happening generally with a hidden post if you read the text carefully. Hidden posts from people on premod say that the researcher is on premod. Hidden posts that have been yikesed are a bit trickier as the difference between the one pending moderation and the one that has already been morderated is not that different and a bit ambiguous. There is one that specifically says it's been referred to the Editors for a decision.

I really must get round to making an A page on moderation to link to, with the exact texts and what they mean smiley - whistle


How Muscular Dystrophy effects me

Post 65

Lord Wolfden - Howl with Pride

Useful Equipment F2902037?thread=1467742


How Muscular Dystrophy effects me

Post 66

Lord Wolfden - Howl with Pride

I was diognosed with Ducheane MD in 1977 age 9. I was always falling over at school and could not run and found it hard to stand up. I was pushed over but people by mistake or on purpose.

I went to a special school in Coventry called Exhall Grange in 1980 at age 12. I gradually got weaker and went into an electric wheelchair at age 15 in 1983.

I then went to Hereward College also in Coventry in 1986 to 1991 going onto Staffordshire University in Stoke on Trent from 1991 to 1994 and got a 2.1 in BA Hons Fine Art however fell out of my electric wheelchair and broke my left leg but the shock of that advanced my MD.

I returned home to live with my parents in June 1994 until I left home to live in Aylesbury Buckinghamshire in a Residential Care Home on the 5th of April 1997 this is where I met my future wife. I had to leave there for various reasons and returned to Warwickshire on the 6th of March 1998 and had tempory accomodation at an old peoples home neat Stratford upon Avon. I was eventually offered a bugalow in Southam Warwickshire. My future wife and I moved in on the 2nd of June 1998

In December 1999 I got phmonia and was addmited to Warwick hospital but had a respitory arrest followed by two cardiac arrests and was in ITU on a ventilator for weeks. I was then transphered to Papworth Hospital in the February 2000 they got me off the ventilator and took out my traciotamy. The diognosed I also had Sleep Apnia and gave me a Nippy ventilator which I have to use every night. The events above advanced my MD a bit more. I was also rediognosed at Adambrookes Hospital Cambridge after a muscule biopsy with Becker MD


I was married on the 6th of March 2000

In October 2001 my wife and I were involved in a car crash on the M40 prior to the accident I could shave myself, brush my own hair, sit forward in my wheelcair, I could get myself onto my PC, I could scratch / blow my own nose, I could feed myself, I could hold a mug or glass of drink, I could use a telephone unaided. I could use a urine bottle unaided. After the accident all the above I could not do.

Basically I need full care 24 hours a day 7 days a week.

I could be sad about it but there is no point in that.

In January 2002 I had a chest infection and was addmited to Warwick Hospital again and had a respitory arrest and had to have an emergancy traciotamy which I still have to this day it is just in case I get a chest infection again as I can not physically cough up the secretions so use a suction machine when needed.


Key: Complain about this post