A Conversation for Muscular Dystrophy
How Muscular Dystrophy effects me
Lord Wolfden - Howl with Pride Posted Nov 16, 2005
Thank you for your help guys.
How Muscular Dystrophy effects me
Lord Wolfden - Howl with Pride Posted Nov 16, 2005
Question Corner F2902037?thread=1461050
How Muscular Dystrophy effects me
Elentari Posted Nov 16, 2005
Do they? I did that myself on the stuff I've sent!
Seriously Wolfie, this is the kind of thing they look for, I'm sure they would be delighted to have it. I can leave a message for echomikeromeo, the editor, or one of the other staff members to come over, have a look at it and tell you what she thinks if you like.
How Muscular Dystrophy effects me
Lord Wolfden - Howl with Pride Posted Nov 16, 2005
sure give it a shot
How Muscular Dystrophy effects me
Mr. Dreadful - But really I'm not actually your friend, but I am... Posted Nov 16, 2005
I did all the GML myself too, Shazz was well chuffed about that!
How Muscular Dystrophy effects me
Elentari Posted Nov 16, 2005
Well, I didn't have much to do so I did it as I went along. I don't have a problem with the simpler Guide ML, so I just did it myself to save them time.
How Muscular Dystrophy effects me
Lord Wolfden - Howl with Pride Posted Nov 16, 2005
That is nice Mr Dreadful
How Muscular Dystrophy effects me
Elentari Posted Nov 16, 2005
OK, I left a message on The Post Team page, the thread is here: http://www.bbc.co.uk/dna/h2g2/alabaster/F19815?thread=1467579&post=16997714#p16997714 I'm not sure how long it will take since EMR is in Calfornia! Contributing to the Post may make people get off your back, Wolfie, as it shows you are contributing usefully to the community. :)
How Muscular Dystrophy effects me
zendevil Posted Nov 16, 2005
Shazz is back, not as editor, but in an advisory capacity, Wolfie, i am sure you would get on really well with her, she is lovely & a column in The post maybe about the day to day problems & stupid situations people with disabilities encounter would be a great way of raising consciousness in general.
It could be very humorous too, just 'cos we can't too fast doen't mean the sense of humour disappears, far from it! I would be happy to collaborate, i bet others would too *visions of "Crip's Corner:sit down comedians unite"
zdt
How Muscular Dystrophy effects me
Lord Wolfden - Howl with Pride Posted Nov 16, 2005
Frankly, I can not see what I have done that is so wrong? I am just living my life day to day with a smile and a laugh
How Muscular Dystrophy effects me
Lord Wolfden - Howl with Pride Posted Nov 16, 2005
I find the use of the word Crip offencive please do not use it in my pressence.
How Muscular Dystrophy effects me
Elentari Posted Nov 16, 2005
Good idea Terri. There are loads of people in the 'Crippling Illness' ythread whom I'm sure would contribute.
Or you could do your own experiences as one piece then get involved with that? Just a suggestion.
How Muscular Dystrophy effects me
Lord Wolfden - Howl with Pride Posted Nov 16, 2005
physically challenged sounds better
How Muscular Dystrophy effects me
Elentari Posted Nov 16, 2005
Wolfie, Reefgirl, (who is one of the Post's staff), wants you to post on that thread I linked to earlier yourself, to confirm that you would like to get your comments into the Post.
How Muscular Dystrophy effects me
tartaronne Posted Nov 16, 2005
Physically challenged .
In Denmark the word 'challenge' is, in my opinion, abused too often as an eufemism for problems and hard work. Sometimes the word is well used - as here, because it brings a smile - but other times it just covers up what is really at stake.
I'm on a schoolboard with a mother who has two sons with MD. They both attended ordinary school up to 8th grade. My son was in the class with the youngest.
In Denmark all the mechanical stuff - electric chair, computer for schoolwork, lifting gear, a car for tranportation of the children and electric chairs and personal aidées (young adults on shifts many hours round the clock and every day in the week - the parents are working both of them) is a public service paid via taxes. Still. I don't know about the future though, with the government we've had for 5 years.
And I once worked with a master of art in phychology with MD who had the blackest humour. There was always somebody around to help him with adjusting his head etc.. In the middle of an interview about his research into methods of teaching, he told me he began law studies but switched to psychology because that study had a much higher percentage of good looking women.
How Muscular Dystrophy effects me
Lord Wolfden - Howl with Pride Posted Nov 16, 2005
thank you tartaronne
How Muscular Dystrophy effects me
Lord Wolfden - Howl with Pride Posted Nov 16, 2005
Some 'euphemisms' can be very offencive
How Muscular Dystrophy effects me
tartaronne Posted Nov 16, 2005
Elentari, . I like to get corrected. The only way to learn, stay alert and pick up the dictionary a bit more often.
But why use a ph when an f is quite sufficient?
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How Muscular Dystrophy effects me
- 41: Lord Wolfden - Howl with Pride (Nov 16, 2005)
- 42: Lord Wolfden - Howl with Pride (Nov 16, 2005)
- 43: Elentari (Nov 16, 2005)
- 44: Lord Wolfden - Howl with Pride (Nov 16, 2005)
- 45: Mr. Dreadful - But really I'm not actually your friend, but I am... (Nov 16, 2005)
- 46: Elentari (Nov 16, 2005)
- 47: Lord Wolfden - Howl with Pride (Nov 16, 2005)
- 48: Elentari (Nov 16, 2005)
- 49: zendevil (Nov 16, 2005)
- 50: Lord Wolfden - Howl with Pride (Nov 16, 2005)
- 51: Lord Wolfden - Howl with Pride (Nov 16, 2005)
- 52: Elentari (Nov 16, 2005)
- 53: Lord Wolfden - Howl with Pride (Nov 16, 2005)
- 54: Elentari (Nov 16, 2005)
- 55: Lord Wolfden - Howl with Pride (Nov 16, 2005)
- 56: tartaronne (Nov 16, 2005)
- 57: Lord Wolfden - Howl with Pride (Nov 16, 2005)
- 58: Elentari (Nov 16, 2005)
- 59: Lord Wolfden - Howl with Pride (Nov 16, 2005)
- 60: tartaronne (Nov 16, 2005)
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