A Conversation for Kleine Levin Syndrome (UG)
TREADSTONE71 and KLEINE-LEVIN SYNDROME
springtullip Started conversation Mar 16, 2006
I MUST FIND TREADSTONE71 !!!!!!!
Dear Richard aka Treadstone71,
I was VERY recently diagnosed with Klein-Levin....
I cried when I read your page because I've NEVER HEARD of anyone before remotely sounding like me, AND YOU SOUND EXACTLY LIKE ME !!! SAME SYMPTOMS, SAME VOICE, it could happen MID-SENTACE (and people will just kind of stare at me in wonder)
BUT I (...no, actually , one of the MANY,many doctors I've been seeing )found a combination of drugs that take the spells away!!!
Dr.Boeve says Im the only person ....THE ONLY PERSON IN THE WORLD AS FAR AS HE KNOWS OF....who's ever HAD success --THIS KIND OF SYMPTOM FREE SUCCESS---with any kind of drugs before !!!!!
YOU MUST GET IN TOUCH WITH DR. Bradly Boeve at the Mayo Clinic in Rochester !!!!!!!
My name is Evelyn, PLEASE write me at [email protected]
I will continue to try to find you. It will haunt me until I do: knowing someone's out there suffering EXACTLY LIKE ME, except that there's a combination of drugs out there that could make his life MUCH better! And ps , congradulations on your wedding,you wrote this a year ago so HAPPY ANIVERSARY, I look forward to meeting you & your new wife.....
IF I CAN ONLY FIND YOU!!! AND I WILL, IF JESUS HAS MERCY AND LEADS ME TO YOU, which He probably will cause he's never let me down before !!!!
GOD BLESS YOU
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TREADSTONE71 and KLEINE-LEVIN SYNDROME
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