h2g2 The Hitchhiker's Guide to the Galaxy: Earth Edition

http://www.bbc.co.uk/dna/h2g2/alabaster/F2902037?thread=1451357&skip=0&show=20 It's a thread where Lord Woldfen discusses the affect Muscular Dystrophy has had on his life. It's an interesting read, and Mr Dreadful, Terri and myself all think it would be a good addition to the Post once the info is collated. LW has agreed to let me post this so you can see what you think. :)

I can't speak for the new administration but, if he wants to put the request to us personally and if he needs help in collating it, we'll do all we can

Shall I get him to post here then?

Yes please

Just to weigh in and repeat things needlessly, of course we'd be interested! Just make sure we have the text when it's done.

EMR

I told him that you want him to post here, but he doesn't seem to be coming over.

Don't force him if he doesn't want to do it

He said he did, so I don't understand what's happening.

Mybe he has this notion that because I used to run the post and because I don't like him I'll say no, he is wrong of course

Well, I don't think I actually mentioned your name. I thought that EMR would probably see my post first and respond to it, and I referred to her as the new editor. But you may be right.

I'll post Wolfie and ask him if he wants me to collate the relevant parts of the thread for him. I'm away for the weekend, actually getting a break this time, but will be able to put it together on Monday.

Great!

Done - F2095978?thread=1481465 - it would be quite simple to put it together from the thread anyway, but lets just hope he agrees!

Excellent! Just let me know where and when it's done, and we'll run it. If it's not done for Sunday then we can run it next issue.

EMR

okay publish it


I was diognosed with Ducheane MD in 1977 age 9. I was always falling over at school and could not run and found it hard to stand up. I was pushed over but people by mistake or on purpose.

I went to a special school in Coventry called Exhall Grange in 1980 at age 12. I gradually got weaker and went into an electric wheelchair at age 15 in 1983.

I then went to Hereward College also in Coventry in 1986 to 1991 going onto Staffordshire University in Stoke on Trent from 1991 to 1994 and got a 2.1 in BA Hons Fine Art however fell out of my electric wheelchair and broke my left leg but the shock of that advanced my MD.

I returned home to live with my parents in June 1994 until I left home to live in Aylesbury Buckinghamshire in a Residential Care Home on the 5th of April 1997 this is where I met my future wife. I had to leave there for various reasons and returned to Warwickshire on the 6th of March 1998 and had tempory accomodation at an old peoples home neat Stratford upon Avon. I was eventually offered a bugalow in Southam Warwickshire. My future wife and I moved in on the 2nd of June 1998

In December 1999 I got phmonia and was addmited to Warwick hospital but had a respitory arrest followed by two cardiac arrests and was in ITU on a ventilator for weeks. I was then transphered to Papworth Hospital in the February 2000 they got me off the ventilator and took out my traciotamy. The diognosed I also had Sleep Apnia and gave me a Nippy ventilator which I have to use every night. The events above advanced my MD a bit more. I was also rediognosed at Adambrookes Hospital Cambridge after a muscule biopsy with Becker MD


I was married on the 6th of March 2000

In October 2001 my wife and I were involved in a car crash on the M40 prior to the accident I could shave myself, brush my own hair, sit forward in my wheelcair, I could get myself onto my PC, I could scratch / blow my own nose, I could feed myself, I could hold a mug or glass of drink, I could use a telephone unaided. I could use a urine bottle unaided. After the accident all the above I could not do.

Basically I need full care 24 hours a day 7 days a week.

I could be sad about it but there is no point in that.

In January 2002 I had a chest infection and was addmited to Warwick Hospital again and had a respitory arrest and had to have an emergancy traciotamy which I still have to this day it is just in case I get a chest infection again as I can not physically cough up the secretions so use a suction machine when needed.