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2legs - Hey, babe, take a walk on the wild side...

smiley - evilgrinsmiley - cool

yeh. that'll teach them. mess with me, and they mess with my mind, and my minds not a safe place for me to live in, let alone anyone else smiley - evilgrinsmiley - cool

Letter from new Endo consultant (the one I saw at last consultation).

This one the actual, written, through post, hardcopy letter.

CC-ed to my GP, and coped in with it, my discharge letter from May, plus last two sets of results (or three maybe, certainly October and November bloods).

She's.... agreed to everythign I asked.

She's paying attention to my testosterone, and sugesting we'll do weekly monitoring/blood tests, if I suspect/report fluctuations in my levels a lot over the next period; sadly, my LH and FSH look way too low for me to be making testosteorne myself, at least from the last blood draw, I'll try persuade them to measure the LH and FSH again just prior to the next IM testo, when they take baseline T levels anyhow smiley - zen - nicely timed my next Testosteorne IM is on the 23rd Dec. so I get to have bruised buttock I can't sit on all Christmas smiley - laughsmiley - snork mmm.... smiley - ermsmiley - handcuffs - yes, I have almost managed to make myself ... err... O from the sensations of IM injections now... - well it helps pass the time smiley - laughsmiley - evilgrin

DXa scan confirmed.
Heart Electrocardiogram confirmed.
and GH to start.
and, I've scared them to pay more attention, and they're actually talking about my symptoms, which she's listend to me, and listed correctly, brain fog, fatigue, decreased exercise tollerance, cramps, muscle pains, weakness, oedema, cognative problems, etc., etc., - so there is a chance they'll do something, or at least try too smiley - zen

oh. and one interesting thing;

The consultant I was seeing first; the lord God consultant as according to all the nurses etc, in endocrineology, well, he, the Prof, is, as it turns out; not a Dr. seriously. He's not a smiley - bleep ing MD- honory consultant it says... that certainly explains a lot - he might very well be a clever boff on endocrine stuff, but one who should be left behind a closed door, in his evil labority... labourity... lab... smiley - ermsmiley - scientistsmiley - weird

may have to contact them, to queery one thing, slight ability to read one thing in the letter two ways, so need to check if they want me in before the 23rd, for another testosteorne test.

I'm still a litle unhappy about their considering my T4 and T3 to be fine to go ahead with the GH: all the literature says for pituitary caused thyroid defieiciency, that the T4 and T3 should be in* the upper half of normal range; I'm barely in the middle, but they're considering that normal.... - it'll go below normal I guess soon as I start GH which is ungood. smiley - grr

Couple other things on the bloods oughta be looked at, a bit above normal with a couple of enzymes,; I can't quite recall if they've liver or kidney ones, but something like that.... - also my PSA has shot up, from 0.02 to 0.7, but they've not mentioned it; still low, but a sudden big increase nonetheless.... smiley - ermsmiley - weird
potassium and sodium seem nice and stable, so I assume they're not responsible for the oedema, but my phospherous is not in range... not even sure what phospherous does in the body smiley - dohsmiley - erm TSH remining nicely suppressed, which does at least seem to confirm its pituitary derived hypothyroidism with no, or very little contrabution to its malfunction from the radiotherapy in the neck area.

Must try contact GP soon, see if she's still following up the line of getting my oedema examined by the lymphoedema people, although, from memory I don't think my chemo often causes lymphoedema, and I didn't have any lymph glands removed, and, anyhow, the oedema doesn't seem very localised now, as its both legs, arms, hands, feet, abdomin, chest, back, shoulders, face, err, everywehre basically.... - I'd really really really love to try water tablets.... - not least just to see what a massive pee I could do, with the 30 or 40 or more, Lb of water spare in my flesh coming out smiley - laugh
Ruled out DI again, but have now put down as I had a tempory SIAD back in Jan last year when I had the hemoridge, which makes sense smiley - weirdsmiley - erm

Still think some puzzle solving would be nice... more joining up bits that don't make sense.... - still no clue wht the low sodium last Jan and hemordige connection was; did I suddenly develop SIADH and hence the sodium unbalance, triggered the hemoridge.... that might just about be plausible.... - only the low sodium not tieing in with primary addison's, as we now know I'm secondary addisonian, but I guess if the low sodium was the SIADH ... - I guess one could assume that the other hrmones had vanished at some point (so why I no notice symptoms?), then the SIADH was last to happen.... hmmm. which is rahter the wrong way round, but... hmm.... nah it doens't add up I think..... smiley - erm - and I've not the sufficienty cognitive powers anymore as once I had to carefully go through and work it out smiley - dohsmiley - erm - wonder if I can get hold of any bloods from back wehn I had the hemoridge.... ahh... but even if I did, I dont' think I've the concerntration or memory to figure it out anymore... smiley - doh


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