h2g2 The Hitchhiker's Guide to the Galaxy: Earth Edition

finally woke up yesterday just before dinner time, and made it out in evening (

Felt kinda very really ill over night, nauscea, very bloated and paiful abdomin, and didn't really sleep much.

Caught an hour or two sleep just before 7 and got up, feeling fine and... then didn't feel very well again Took levothyroxin and paracetamol, then tried back for bed... nah... felt too ill...

got up, took sausages, and prednisilone how odd; first tiem I can recall actually feeling better on taking the prednisolone

I think that was nearly another adrenal crisis and hospitalisation now just feeling the huge fatigue coming in from the prednisolone, with bone pain, tendon pain, and my arms feeling very heavy (oedema is gradually getting worse), and aching all over and brain foggy may try sleep again later in day, probably when W gets home (was up early as he was out this morning for an appointment, but oughta be back fairly soon if the rush hour traffic has celared enough for the buses to get through ) I'm sure there is a balance of the levothyroxin and prednisilone that might work, but I'm not convinced its even going to be the same each day and I've no way to deduce what it might be at any point, it seems.... Sometimes 4 MG pred is way way too much whereas somtimes 5 or 6 MG goes down a lot betterer must try find out what my thyroid levels are doing now, I'm kinda alternating 50 McG and 25 McG days, with occasional 75 McG days, but rapidly running out of the tablets that doin't make me ill - a pity as I've about six boxes of hardly used levothyroxin tablets, and I dont' think any of the brands are wildly cheap ... don't think the parmacy will take them back, not even the unopened boxes of rubbish brands they keep trying to fob me off with I miss the chemo drugs, they were nicer.

Still feeling nauseous... but must try eat something for dinner, soon, so I can take more steroids at least today is the last antibiotic day, assuming the infection clears and the lymph nodes go down so I don't have to start more antibiotics I think Dr said leave it a week after antibiotics and if the infection stll looks active and the nodes are still Up, I need to go back see her again, and maybe contact oncology as they've a little bit of an interest in my having swollen lymph nodes in the same location as the lymphatic cancer last year Not sure if junk food for dinner, like pizza, or soemthing a bit more propper would be most settling on my stomach and acid reflux gradtually starting to wake up now as morning steroids have started wearing off a bit drinking fennel tea to try settle things a bit

gosh. felt so rubish all day... now, just a couple minutes before 1 AM, and wosh.... woosh I mean - brain fog vanished, muscle weakness gone, fatigue gone, neuro-muscular transmittion working better (I'm typing at a proper speed again), coordination returned - so I've woken up, just in time for bed... in order to try sleep, to wake up, feeling fine, to take meds to make me feel il again I'm lossing t the sense of reasoning behind my treatment Must try find a Dr who can actually figure this out I bet my utterly weird serkadian rhthem has something to do with all their blood readings on me, being utterly wrong... I.E., don't think they're getting an '8 AM' cortisol reading from me, at 8 am, as my body has no clue its ment to be at the high point of production/realease that time of the day hmm... that would explain so much

Just ate ghurkins and cheese and a couple burgers for a late dinner, or early breakfast, or lunch, or dinner, or whatever time of day my body believes it now is and... oddly the wildly distended abdomin is behaving a bit its kinda 'shrunk' in, about 5 inchs time for more te.... fennel this time (had peppermint most of the evening)