h2g2 The Hitchhiker's Guide to the Galaxy: Earth Edition

Well, the short lived feeling better was... short lived. - Its just an odd mix actually.

The last two nights me and W have gone for long, two hour walks each evening, by the river, through town etc, which physically doesn't cause any problems at all. I mean, my legs hurt constantly, mixture of muscle and joint pain, plus cramps, plus weird shooting nerve pain on at least one of my feet, and just the general discomfort still from the oedema/swelling in the feet/legs/toes etc. Oddly the swellin in my hands and arms doesn't bother me so much, and anyhow, I think the prednisilone is marsking the tenden pain on my right arm that plagued me for months.
Mentally my brains just not functioning, as a combination of the brain-distructive effects of the prednisilone, and the brain missing out on now having hardly any testosterone about, and of course, then looking for oestrogen/oestrodyle, and not finding any.
Lots of hot flushes. constantly overly warm.
Plus, of course, maybe still an effect caused by insufficient thyroid hormone, which drastically afects neurological functioning; it actually messes up the sodiumpotassium movement on axons, and so prevents nerve transmittion when thyroid levels are low.

Tomorrow is a busy day though, at the endocrine clinic, to see the nurses.
First, lots of blood work, all the hormones, FT3, FT4, TSH, testosterone, and Vit D,plus B12, folic acid, iron, and probably some other stuff I can't recall, and I assume basic electrolites, and things like the liver markers to pick up any delaterious affect of the testosterone injections, on thickening blood, and PSA of course, etc...
Then the testosterone injection, IM.
Then, if they've finally gott the go-ahead from oncology, and got all the necessary there, I'll be learning how to self-inject subcutainious human growth hormone which sadly I'll then have to inject every day for the rest of my life I think but... it might make me feel better Startintg on a low dose, to titrate up to the lowest dose necessary to bring my ILGH1 (I think it is), to within normal range (insulin like growth hormone/factor one). Then, if that doesn't take up the entire day, we're walking round the hospital to the Maggie's cancer support unit, which I found helpful (that is where I did the yoga and stuff), and we've got a cheque for them, to give them the money we took in gifts at our wedding (plus some extra we threw in to make it a round number )
Hoping the testosterone kicks in gently but quickly, so I can stop these hot flushes and have my brain for what its worth, back inside my own body again (to the extent it ever is, thesedays).
Going to try ask the nurses again about several things, like side effects, the oedema, etc, and digestive problems I've had now for over a year but which everyone ignores. Quizz then as to why I'm never told about side effects of the meds they give me, and see if I can chase up a date for my bone density scan I should have had like last March or something.
Didn't sleep at all last night. felt fine, as then there was no steroids in my blood to make me feel ill. started feelign rubbish not long after taking them at 8 AM (take the thyroid half an hour or so before the steroids). Just had to eat a roll I didn't want to eat as I wasn't hungry, so I could take the evening steroid (taking it without food is a bad idea, I tried )
also hoping the testosterone injection err... helps alieviate the incontinence that's come on the past week or so, which I think can occur with low testosterone levels Oh, and must tell the nurses all the stuff the Dr/Prof didn't want to hear like symptoms and symptom abatment with the switch in steroids, the prof just... didn't want to know that the change in drugs had changed anything mind, he didn't really seem to realise that he was the one that sent the letter to switch my drugs either sweating buckets in this heat too, anyhow, especially with the hot flushes, ATM

No idea what is for dinner. Not particularly bothered really, as my sense of taste and smell has vanished again the last few days (I'm guessing that is testosterone related too, as yet again, I think)

The worlds a strange place when the perception of it can't be static, and any reality that does exist, is therefore not a reality, as it shifts constantly within ones perception of it. - noticed randomly too my hypersensativity to sound has returned, which is odd as I thought that was a side effect of either the hydrocortisone or the low thyroid.... I guess I could have slightly dropping all the time thyroid levels, if the remaining bit of thyroid indoginous function is dropping still, which could of course, still be down to radiation dammage from the radiotherapy last year, but oncology don't seem to follow up any side effects now.