h2g2 The Hitchhiker's Guide to the Galaxy: Earth Edition

way too much hospital stuff this week

the new gorgeous purple dress is gorgeous and purple and linen and lined though. And, the weather is far too cold for wearing it. Which, of course, hasn't stopped me wearing it out a few times, with leggings, and useually the red blazer/jacket and/or wool coat

Scan Monday. Dr on Weds oncology/hematology/Radiology clinic said scan shos that remission thing, still which is good I guess - mind, he also said the MDT was to look at it, or something, and I'd get a call today about it... Which I didn't get of course

the Dr clinic was Wednesday, and asides mentioning that scan, from Monday, he didn't really say much... Asides revealing he wasn't quite sure what chemo I'd had, as he seemed to think I'd had vinchristae not vinblastin, as the responsible agent for my neuropathy same kinda thing/agent I know, but... not what I had innit...
mentioned to him the neuropathy, the cognative stuff, and things, and he sort of said it might get better... Mentioned the knackered shoulder/arm from radiation and he said... it oughta get better, adn we left
not entirely sure the purpose of those clinic meetings, seem a waste of time really, not like they do a physical examination

oh they did bloods beforehand and then didn't mention them, so I assume they were OK.

and they weighed me. put on more weight, damn steroids.

Endocrinology clinic was this morning

Last testosterone (the second so far) was the 22 Oct, and I'd just started having hot flushes before that injection; the blood test on the day of the 22 revealed my testosterone as being 5, so it'd gone below 'normal range' within two months

which is kinda good.... as it ment Prof was fine to let me book in for another injection of testosterone, at the end of Dec, just before I fly away for Chriastmas to ... snowier climates

Got the low-down on the MRi of the pituitary, the sphegmoid sinus, that is full of 'fluid' associated with the hemoridge of 1994 (my first brain hemorridge), is 'stable', - as it appears the same on a scan I had back in 2008. it seems the responsible agent for dammaging my anterior pirtuitary neurology (who apparently remember me from 93/94), say there isn't a need to drain it; as it'd likely cause more dammage than good doing

Possibility however I may end up loosing TsH, and thereby need thyroxin at some stage

Prof doesn't think I can have HGF replacement as it may increase risk of lymphoma returning, but he's gona check that with oncology pity as HGF would help me regain some control on weight I think, amongst other positive effects of replacing the missing hormone

he said my test on adrenal function shows I do need to carry on the hydrocortisone, so BoB-knows how I can ever lose weight, I've now about 3 stone to return to my weight before chemo started

Asides that... didn't do much else this week, though I did get a pair of rather thin thermal gloves, that seem to be working OK so far.

Wish my spatial awareness would return. made a loverly crunching sound, and maybe broke my nose a bit earlier, plugging the laptop in; smashed my head into the wall, full force. getting loverly cuts on my feet too from doorways, etc, luckily my shoulders don't seem to bruise too easily

Didn't sleep last night, so sat up listening to music all night on IPod before heading to hospital, caught up a bit though, and dozed for 45 minutes this afternoon.

Didn't sleep well Monday night, as I was hot and cold at the same time; how is that even possible? - maybe the injected die/contrast agent for the scan made that worse than the normal inability now to regulate my body temp. or, rather my inability to know what my body temp is.very odd.

off to see Deep Purple, in London, Thursday, with a friend....

not much in diary cept for testosterone injection on 21 Dec I think it is, which I'll probably combine with going to get my port flushed; can't really organise it being removed now, until the new year, then, of course flying out on teh 23rd Dec

Did try to arrange port removal today, but probably spoke to wrong person as they weren't helpful; now both endocrinology and oncology have confirmed they don't need it... can't wait for it to go... and it'd save the bother of having to visit the hospital every month to get it flushed...

may go to bed soon as its just gone 1 AM, and I think I've had about 6 hours sleep the last 96 or so hours/4 days or so...

not tired at all natch.

[Amy P]