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NaJoPoMo 24 Nov - 2legs
2legs - Hey, babe, take a walk on the wild side... Started conversation Nov 24, 2015
I retunred from the sunny wilderness of Suffolk. actually, it wasn't sunny... It snoed a bit, and very was very cold Neuropathy ain't fun when its cold ouch. need betterer gloves may try find some on Thursday My expensive leather gloves are useless as are the generally warmer but cheaper leather ish ones I have off of the market so... dunno what else to try really, can't be anything too bulky, as I already can't feel a thing, and that would just be worse the thicker the gloves are I guess
got back Monday, met W at teh railstation, and got the bus to hospital,
went to PEt/CT and asked about the scan... yes I did need die to be injections, so we said we'd go up to vasuclar access to get the port accessed... at which point they mentioned there was an appointment for me, with them, already... which theyd not told me about
So went up to vascular access... got the butcher of Bagdad or something, took him three stabs as it were to gain entry to my chest
went down... waited... a whilst, removed my err metalware etc, then went in for the scan, as per, and did the breathign in and out as directed, plus then had the die injected and didd the breathing things again
Home late, so had a Jamacian from over the road, for dinner
Went did a bit of shopping today, and picked up some more drugs from the pharmacy
one of the pharmasists made a nice comment about my moustache.... but, seemingly didn't notice I was in a skirt
Nurses and receptionists in oncology at hospital, actually on Monday, seemed to notice the moustache more than the transvestism or, rather be more shocked by the moustache than the dresses/skirt (W was showing them pics!)
Oh, also whilst at hospital Monday, went to radiotherapy to ask about the radiotherapy clinic appointment, tomorrow, which they pointed out was an oncology clinic appointment... err... even though the letter says its radiotherapy... because.... "thats just how the letter is worded"
OK. so... why word it wrong and not right? honestly... I'm only trusting these people with my life you know.
OK. so they want bloods tomorrow, so... another needle thinggy of some kind, may just use a vein rather than the port, as the port was used on Monday... - why they don't say in the ltter that I do, have bloods, or not, is beyond me; I could have then hadve done the bloods for Thursday, on Monday, whilst I was there anyhow... <groaN.
Depending which consultant/doctor it is tomorrow, I can try talk to them about stuff, though if its the dangerous one, I'll just not sit down and leave the hospital instead. she's a liability.so hope its not her
then no hospital Thursday, but endocrinology clinic appointment Friday morning, with the Prof so much to talk about I fear then.... results of teh synaptin (sp?) test, how the testosterone was looking in my blood last time they measured, results of the MRI, whether I have permission to go grovel to oncology, to go write to vascular access, to pleed to have my port removed, and, possibly, to talk of the HGF injections, which we've not started yet good job I can't feel injections anymore oh, and maybe talk of hydrocortisone dosage etc too yeh... baby... I'm an endocrinologist wet dream
was out today for a meal, tonight, with the ten pin bowling mob... our Christmas meal in effect... was ... OK I guess...
off next week to see Deep Purple in London.
Oh.... and I accidentially bought a new dress whilst I was away which arrived today a sort of purple, linen, and lined... and about knee length perfeck fit man innit I think well, I'd not like or feel comfy in much any tighter....
so... not a great deal happening really just so feeling the cold... - I think the chemo, or something has rewired or just busted my internal thermostat didn't sleep last night, just 'felt' so hot... but, I didn't 'feel' hot... so the 'feeling hot' is just a ... neruological portition err ... apportition err... apporition I think like my not being able to work out time anymore. that is ... just werid - though oddly I've sort of half started being able to do mental maths, like adding up money and working out change I should be getting, and knowing that the £2.50 in my hand, is enough to pay for something costing, say £2.47
werid? weird? nah. the weird hasn't even started yet
NaJoPoMo 24 Nov - 2legs
Amy Pawloski, aka 'paper lady'--'Mufflewhump'?!? click here to find out... (ACE) Posted Nov 25, 2015
[Amy P]
NaJoPoMo 24 Nov - 2legs
2legs - Hey, babe, take a walk on the wild side... Posted Nov 25, 2015
Pic of my moustache... and the new purple dress... plus I think purple leggings and my necklace... now up on twitter well, the sun was briefly out so W took a pic think I'll change to my black skirt adn a purple top.blouse for the hospital/oncology appointment later though, as its not overly warm out and this dress doesn't have very long sleeves... think they're what you'd call 'cap' sleeves
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NaJoPoMo 24 Nov - 2legs
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