h2g2 The Hitchhiker's Guide to the Galaxy: Earth Edition

maan.

Apparently. 'the decent ones', as we had to sign an extra 'thing' in order to get them at the chemist/pharmacy

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Visited GP yesterday, after hospital in the morning;
Got scripted tarmazipem; isn't that just basically valium? - well, I didn't get on well with the zopiclone (anxiety and panic, and paranoia attack, if* it worked at all...).

OK. so took the tamazipem last night, and... I slept! - first sleep in... well, I'd slept about 6 hours over the previous 72 hours, and I think the night before was no sleep at all...

Still taking the melatonin for sleep too, so, now its melatonin plus the tamizepem to actually make me sleep. - still woke three times in the night, for... no obvious reason <alienfrown: but at least I did fall back asleep after each waking which is... a kinda novel experience

Asked GP if he'd had reply to the letter he wrote to my consultant; no.
Also asked GP about the response we've had from the CNS and oncoogy in general; we've been directed to PALS to try get some movement on things;
I've still got chemo side affects, and haven't anyone now at oncology'/hematology to raise em with; E.G., cognative stuff; memory problems, concentration, getting the wrong word half the time, plus mental/psychiological stuff; I just can't take a descision on ... often the most stupidist of things, and I just kinda... end up in a circular series of thoughts I can't resolve; which is most weird... - physical stuff, like the fatigue, etc, and err, some of the other side affects I have, asides the hot flusshes; due to the not having any testosterone which is, itself, probably due to the chemo... - Mind, I'm kinda getting used to my new... chest

err. yeh. cognative side affects; entirely forgotten now what I was going to write next!;

err, think that was about it at the GP... oh; bloods; got the forms from him for bloods, which we can get done monday, for the bloods endocrinology want done... such a stupid route to go about getting bloods done:

Endocriniology write letter to me and to my GP: Letter to GP is missing a page where it lists the blood tests requested.
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We take our letter to GP; who show it to receptionist; receptionist photocopies GP's missing page; gives it to GP
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We go to se eGP; get bloods form.
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We go to sainsbursys supermarket, monday, get bloods done.
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Blood results sent to GP.
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GP sends blood results to the hospital/endocrinology.

I notice; the form from Gp is missing some of the tests, that the letter from endocrinology asked for; I have no idea why this is the case.

endocirnology appointment is on the 11th; hopefully to sort out my testosterone, if nothing else. - any chance the bloods will be done, and make it there on time? I doubt it.

Earlier in day, on friday this is;

Hospital;

Saw Dr in eye clnic;

Oh ny!

First Dr I've since diagnosis seen; who had read my notes.
Seriously.
so wish other Drs were like him.

Also; the only Dr or nurse who has noticed the two medical bands on my my wrist.

ahh. and he's observent. too... observent... deligent Dr... gosh could have done with one of tohse 6 months back

anhow, eye idsn't not looking too aweful, from being dry; the artifical tears/drops/creams/gels I'm using are fine; carry on using them for now; who knows, with time, the tear ducts, etc, on my right eye may recover from the chemo toxixicity and start working again.

Went to do a bit of shopping today, with William.

bought a new frying pan

went in and out dozens of charity shops, on a road near me... - found and purchased a new gorgeous green long linen blouse - also found a loverly pink sleeveless blouse, but decided not to buy it, then when went back to find it; we couldn't recall which shop we'd seen it in !

Oh, t and the melatonin and tamazipem thing, I also had about four or five pints of beer last night, to help it work. err... most medacines seem to work better with beer.

also bought some other stuff whilst shopping... err... nah. I can't recall what... hmm.... ahh, more soluble paracetamol for my throat (it did feel like it was easing, from after the radiation but, now, not so sure... still a bit peeved they were radiating that close to my neck; I'd not been told they were doing that when I consented to treatment/radiation )

I do. however. have a cunning plan. if my memory and cognition doesn't improve; if I can't learn nuffing new (which I can't at the moment; no short term memory or concentration is not good for that), then...

I've only one option - to just devote the rest of my unnautral life to total debauchery and heddonism Its the only answer TBH err... I can't read s anymore, even, as a passtime; I can't concentrate enough to do it, and I just lose the plot of anything which is longer than about 10 minutes or so...

Oddly; reading sciency stuff, related to my education, decades back, is OK; I just can't remember anything of new matterial I've read; unlike oo, just before Christmas, at least, when I still had my total recall memory for such things that's something I really miss. - yeh, it may improve with time...

Must go clean kithecn, then think about getting dinner for W and I

Tamazepam can make your memory worse, which is probably not good news and drinking alcohol wile taking it while normally frowned upon (bad 2legs!) should increase its sedative effect... and you do need to sleep


What is it with doctors and being bad at sending/receiving letters! I am glad that they seem to be taking care of you and that you finally found an eye doctor who had actually read your notes

The eye doc reading my notes was good. but bad; it did rather point out to me, how inattentive all of my oncology/hematology docs are; and, well, the eye thing isn't really much of a medical problem, afterall the eye doesn't work anyhow.... - but it would have been nicer the other way round, with more attentive diligent cancer doctors really I guess cancer is a kinda more significent illness than a bit of a damaged cornea and non-working tear ducts, all in an eye that doesn't have an adjoining optic nerve, to actually like work

Sleep.
so. thats what sleep is!

Oh! My! BoB!

Right. that is the best, and possibly only decent nights sleep I've had, since. sometime before 1994 I think.

It feels amazing!

I must admit... and maybe due to the beer... I was left a littel spaced out today, for rather more hours after waking than one oughta expect but... in a kinda nice relaxed slightly stoned sort of a way ;

converlsy; my memory and mind, and thinking and cognition is working. not 100%, but.... so damn close.

I've entirely reorganised the entire kitchen and all the cupboards. (William helped me sort out the spice cupboards and make a few decisions I couldn't, on whether to throw some things away)



Unlike the zopiclone, the temazipem sleep is like real sleep; the zopi just ... sort of knocks you out, and you don't wake feeling like you've slept (actually it was damn horrid, I can't imagine why anyone could get addicted to zopi)



W and I did housework, and Williams now gone for a nap... I wasn't feeling tired enough to bother trying...

I'm going to make a start on dinner soon, for us

blimey.

sod the cancer. one decent nights sleep and...

must be careful with dose and timing tonight; need to be up relatively early and go for half hour walk to get to place for bloods, for endocrinilogy - this morning... felt a fair bit groggy for a while, after the good nights sleep, so must ensure I don't drink too much beer with the temazipem tonight