This is the Message Centre for 2legs - Hey, babe, take a walk on the wild side...

panic. don't panic.

Post 1

2legs - Hey, babe, take a walk on the wild side...

smiley - bigeyes I swer the hospital do it on purpose, just to raise my BP smiley - laugh - three letters from them sitting on the doormat today smiley - yikes

One from last clinic in oncology.... err. like way back on the 10th or soemthing.... nothing astonishing in that... hmm, barely anything in it at all really... smiley - erm
perplexing letter from endochrinology... hmm. oops. so they think I'm on a 30 MG a day dose currently... - I altered my dose, and I'm on half that a day smiley - laughsmiley - erm and they want me to reduce my dose, post-radiation to ... 20 MG a day... but... I'm already on less than that at 15 Mg per day smiley - laughsmiley - erm Hmmm.... something about positive for some antibiodies..... don't recognise teh antibody name... think its penitious anemia related, but... I thought I didn't have that afterall smiley - alienfrownsmiley - erm they want to monitor my B12.... is that the same as folic acid? I alwyas get confused with teh b-complext things... smiley - erm - hmm, if I've got low folic acid.... (I was taking folic acid tablets, until I ran out... but confusingly they were scripted by an oncologist not a endochrinologist).... maybe I'm just pregnant... that... hmm. actually. seems a little unlikely in some ways smiley - laugh

thinking I maybe oughta up my hydrocortisone dose a bit, once rads start... 15 MG is pretty low I guess... but, I don't half feel a lot better on the lower dose; the 10 MG tab, first thing in the morning, would just... whipe me out for hours smiley - doh of course; too, lower dose = less appertitute, which means I eat less, which... is good... smiley - blushsmiley - divasmiley - handcuffs
err... there was a third letter... err... ahh, can't have been important, forgot what it was about already... probably something to do with... oncology... probably smiley - erm
off to GP tomorrow to have folic acid measured... or at least ask them to measure it... or soemthing... hmm. booked the appointment earlier... not sure I kinda recall what it was for now... given my bodies entirely falling to bits, I expect I can find something for him to look at, prod, or remove blood from smiley - laughsmiley - doctorsmiley - erm
Maybe I'll just empty all my bank accounts, before radiation is due to start... and escape teh country and go to somewhere exotic and hide... smiley - ermsmiley - wahsmiley - handcuffs I've a funky endochrinology test sometime in september, adn endochronilogy clinic sometime in October... still need to get them to think about prospect of my having SIADH, which they seem to have ignored (guessing they didn't get neurology discharge letter either) smiley - ermsmiley - shrug see if I can get endo to do more tests on my pituiatory..... or perhaps pituitory is more neurology.... BoB-knows . maybe escaping to a forign land is the answer afterall.... just go into hiding.... somewhere.... submerged in a giant glass of gin... smiley - run


panic. don't panic.

Post 2

8584330

That seems really confusing.


panic. don't panic.

Post 3

2legs - Hey, babe, take a walk on the wild side...

which bit in particular?! smiley - biggrin - basically... endochrinology told me to stick with the 30 Mg a day dose, but, I went back to the 20 Mg a day dose, then, on keeping finding myself so horrible ill feeling, as soon as I took the morning pill... reduced that to a 5, as well, so took my total dose, dialy, down to 15Mg..... which of course endochrinology don't know I've done... - but, basically they, and other docs too, basically told me to self-medicate/regulate dose; if I'm ultra stressed, ill with an infection, or getting tissue damage, etc, I need to up the dose; hence I'll up it when on the radiation I think; to help aid tissue recovery etc smiley - zensmiley - zen
the reason the follic acid was scripted for me, by oncology rather than endochrinology, was taht the blood result came up on her screen; may have actually been a oncology blood test, i forget... - at the time I swear they were saying it was penitious anemia related, but, then they went back on that... smiley - huh so, no idea why its low smiley - huh (assuming it still is).

OK. came up with a list of things can mention to GP tomorrow... my really painful left wrist/hand, no idea what's happening there.... the need to get a blood test for folic acid and/or B12, and, ask him if he had a reply about the missing discharge letter, and, enquire if anyone anywhere should be doing anything about me, having, apparently SIADH... like treating it or something smiley - ermsmiley - weird
So. not much smiley - laugh still mystified why I've not had a follow up chemo/oncology appointment.... - can't see they've any plans to do any more bloods or anything, or, say, follow up on side affects I've still got, like muscle pain, cramps, joint pain, lask of coordination, lack of spatial awareness, the perlipheral neuropathy, chemo-brain, fatigue, etc., etc., smiley - yawn

got to put in repeat prescriptions tomorrow, for both circadin (melatonin), and for more hydrocortisone, I think... and I must try find someone who can come fix the broken windows... well; the opening mechanism on them has failed smiley - doh - should be under guarentee still, but can't recall what firm I had fit them now... smiley - dohsmiley - erm


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