h2g2 The Hitchhiker's Guide to the Galaxy: Earth Edition

i'm very new to this. i found the site whilst lookin for info on marfan's syndrome with which 14 y/o daughter has just been diagnosed. u looked like friendly person so i thought i would just say hi.

there u go........hi!

Hi
I'm very pleased to meet you

I'm so sorry to hear about your daughter's diagnosisalthough you can tell her she is in good company as Pharaoh Akhenaten A511679 also had Marfan syndrome, there's an edited entry which might help you with information here: A3065140
and this might be helpful also:
http://marfan.org.uk/
or if you're in the US: http://www.marfan.org/nmf/GetContentRequestHandler.do?menu_item_id=13

Take care, all the best to you all.

Galaxy Babe