A Conversation for Systemic lupus erythematosus (SLE)

Systemic Lupus - SLE

Post 1

catherine

I had been diagnosed nearly fifteen years ago, I have moved three times since and the new GP Doctors ignored the condition or did not understand the condition sadly I have had no proper treatment for fifteen years. My SLE flare up,s are very frequent now and take a long time to go away, I now have my medical records which states SLE and was confirmed by the surgery nurse to-day with my records she had. I feel gutted that the three GPs in differint parts of the country have ignored giving me proper medical help and I wish I knew of a good GP who could help me.smiley - sadface


Systemic Lupus - SLE

Post 2

2legs - Hey, babe, take a walk on the wild side...

You really must change GP, or at least manage to get your GP to refer you to a specialist at the local hospital, You could end up with perminant long-term damamge if its not being treated properly smiley - hugsmiley - goodluck


Systemic Lupus - SLE

Post 3

catherine

I am seeing the new Doctor on Wednesday,my other Doctor has just retired, I hope that treatment is available also suffering from Ischaemic heart disease found that out yesterday put on my records 2004 and I have recieved no treatment for this either. Still in shock about all of this but I live in a post code lottery area for drugs and treatment, many thank,s for your reply to me.


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