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hayayfi Started conversation Jan 19, 2007
Hello quiet soul searcher
I came to your personal space in a round about way it struck me as both creative and peaceful
My sister has fybromyalgia as does a close friend and I have watched both over the years have there good and bad days, I sincerely hope you have more good than bad.
I to spend a lot of time in my head contemplating life, faith and purpose, in fact I looked up to my husband this evening and said (as he made yet another joke about how much time I have spent online since I discovered this site a few weeks ago) that this is the perfect site for me I have now found a way to do the whole interpersonal thing in an intrapersonal way.
If you feel inclined drop by and have a sometime please do
Hello Soulsearcher
QuietSoulSearcher Posted Jan 20, 2007
Hello hayayfi, nice of you to pop by. I am sorry that your friend and your sister have this condition, I hope they are getting the help that they need, because for a long time I didn't.
I found this site a while ago through my husband but for some funny reason I only come to it every now and then, I don't know why. I have got a lot on my plate to deal with I suppose. I try to spend as little time in my head as possible, because there are dark scary corners in there, full of Ghosts. I have often found it difficult to talk to people, prefering to sit quietly in the corner and absorb what's going on. I suppose this comes from never really being taken seriously, even by my parents, until I met my husband 7 years ago. I surrounded myself with music, literature and hamsters and to some extent I still do. But there is one key important change in my life that helps me deal with everything: I am in love and I am loved, I couldn't ask for a better husband.
I'm afraid you catch me in a frame of mind. Feeling a little sorry for myself, tablets, tablets everywhere and no avoidance to be had! No job, no immediate guarantee of one. Can I ask you something hayayfi? Do your friend and sister find their working hours restricted by their FMS? And do they have any of the other glories that go with it, if you don't mind me asking. Can I give you a piece of really good advice (I hope you don't mind) GET REGISTERED WITH MEDIC ALLERT, I strongly recommend this if your sister or friend had an accident and the appropriate body came out to pick up the pieces, knowing they had FMS could avoid them suffering complications from medications given at the scene. I have found out from various reliable sources that certain types of antibiotics, anasthetiocs and FMS are a big no no.
Hello Soulsearcher
hayayfi Posted Jan 21, 2007
I also am married to a very special man who is responsible for much of that which is good in me.....would also have to plead guilty to spending to much time in my head
My sister does not suffer as much as my girlfriend who I have watched over the years trying one treatment after another I have spent many an hour praying for some respite for her and believing that one day there will be an end to it it seems so cruel and unfair and I dearly wish there was something I could do
Actually I dont think either of them wear medic alert bracelts I will bring this up next time I see them thank you for the thought.
What sort of job would you like to do if you could?
You mentioned you like literature and music what sort? My family make jokes about my book purchases. At one stage I worked in a bookstore to pay for my addiction, I am glad to say that it is now more under control though that has more to do with the fact the nearest bookstore is several hours away I suspect.....Hurray for Amazon.com.
I appreciate people that take time to reflect and speak from the heart so please don't apologise
Hello Soulsearcher
QuietSoulSearcher Posted Jan 21, 2007
I too wish there was an end to it, I have had FMS since I was about four or five years old and I am now 32. A little gadget that I love is a TENS machine, this helps with some of the symptoms. I am told it can help with nausea but I have not found that to be the case.
Since moving to Eastbourne there is a fantastic library that I use. I love American crime fiction and I try to read 'blocks' of books by the same person, with the same detective.
Mucis. I am an odd animal. I like classical music, country, trad jazz, fifties music, Guns 'n' Roses and Meatloaf, especially the 'Bat out of Hell' albumns. I like some seventies groups as well; ABBA, T-Rex, and Queen.
Hmm... what would I like to do for a job? My dream job would be to work in restoration, but the amount of physical work involved prohibits this for me. So, until I can raise the finances for my own little concern, I flit about in retail, in which I have qulifications.
What about you?
Hello Soulsearcher
hayayfi Posted Jan 21, 2007
For the past five years I have read mainly text or reference books mostly in the areas of learning and communication, I also like reading books on science and autobiographies this summer I read four fiction books something unheard of though once upon a time that was all I read. I use to read Ellery Queen, Agatha Christie when I was younger then when I started boarding school it was Jack Higgins, Leon Uris and the like, now if I am reading a novel I prefer books like The Good Earth, To Kill A Mockingbird, Walden I find it hard to find contemporary novels that interest me so I stick to what I term the classics though they probably don't really fit that category
The last thing my girlfriend tried was a new drug that made her very ill and gave her panic attacks, she has since come off it but is still waiting for the side effects to wear off. Sometimes I think the doctors are more interested in using her as a guinea pig then in actually helping her.
We have a small property in the bush which I look after, I also facilitate our children’s learning and lastly I work as a family therapist which I love.
Would you want to own a retail shop selling clothes or something else?
I like classical Puccini, Kathleen Battle, Jazz but not the modern stuff more Glen Miller that sort of thing I also like Elvis Presley, Bette Midler, Striesand, Michael Bolton, Sting, Supertramp a weird assortment I'll grant you My hubby use to D'Jay and his collection is huge we often rib each other about our very different taste in music.
Well I should be out watering the orchard before it gets too hot and the water evaporates
Hello Soulsearcher
QuietSoulSearcher Posted Jan 22, 2007
I have a great uncle in Oz. He used to fly for Quantus in the days when they used old Avro Ansons and it was a miracle they stayed up!!! He never returned to England when he retired.
Do you mind me asking how old you are?
I have had a variety of medications over the years. Some left me able to apply for job as an alien in Star Trek!!! Do you know what she was given? Hey I may have been there. I am an official g pig at our local hospital. Terrify physio's and confound general medicine and with a season ticket to accident and emergency!
Are you native to Australia or did you move there, come to that there is alot of Australia which bit do you call home? Have you any pets?.
You can probably look up my home on the internet Eastbourne has a guide entry so I am told, also look on www.eastbourne.org .
Did I tell you I have been advised to remain sprogless. So we filled the house with hamsters!!!! Eleven of them in fact. I find I get a weird mix of reactions when I say I cannot have children (easier than the long explanation that takes about, oh, a week!) Some women treat me like I am to be pitied and molicoddled, others are downright nasty. Saying I am unnatural (I already knew that ). I have had some really horrible things said to me..
Ah the is here, have to go. Mothership will be wondering where I have got to!!
Hello Soulsearcher
hayayfi Posted Jan 23, 2007
In answer to your question yes I am a native Australian my children are 8th generation with my forefathers coming from Scotland, Wales and Ireland we have a news paper clipping of my great grandfather times five I think it is being recorded as the first preacher to preach to the miners at a place called Black Stump. My family are either farmers or preachers what they did back in Britan I don't know. This is on my mum's side.
On my dads side we know very little as his father was killed in WWII when his submarine was sunk off the coast of Malta by a german boat.
You sound like us we also have a frequent user program with the Ambulance service but that is because my family seems intent on finding as many ways as possible to end up in emergency when we lived in country NSW the ambulance crew one time commented oh your that inmfamous family I kid you not.
My girlfriend was not going to have children but now has 2 whether this has affected her health more I do not know but I don't think it was for health reasons she started so late.
We have four children which is considered large these days I know, we have friends that have been married some 25 odd years and choose not to have chidren and up until your posting I had never really thought about it one way or the other seems to me some people have chidren some people don't and some people can't It always amazes me the way people feel threatened if everyone around them isn't doing the same as them personally I say Viva La Difference with a french accent of course
I am 42 and really don't care who knows I am one of the apparently insane women on the planet who actually enjoys getting older but then I find life just keeps getting better and better
Well I really need a swim now but I wanted to respond to you before I
Hello Soulsearcher
QuietSoulSearcher Posted Jan 25, 2007
Well we have a lot in common my family too were preachers and farmers. My family is Scottish. Been in england for about 100 years. Somewhere along the line we were not a working class/middle class family, records of our family are a little sketchy after 1745. They were a sub clan of another clan. Wealthy, titled and owned land. Until the British came along!!!!!
I hale from letchworth garden city where our tribe decamped too in 1908 and helped build the town. They were at that point greengrocers. Growing and selling fruit and vegtables.
I am 32 but pass for 18-20yrs old. This causes infinite difficulties. I do not care either who knows how many decades I have clocked up.
Did I say I had hamsters by the score?? They are curled up in bunker style nests!! Think that sums things up!! We have a smattering of snow here. I would rather stayed curled up under the duvet with a cup of earl grey and a good book . But I have to go hunting and gathering and attend a job interview.
t.t.f.n
Hello Soulsearcher
hayayfi Posted Jan 25, 2007
Hello, well it is another stinker of a night and I am off again for another swim in an attempt to cool off before trying to sleep ha ha
Our family names are Stuart, Evans and Bannister on mums side my hubby is a scott too though we neutralised him a few years back and now he claims aussie status. His group were such a small clan they had to join up with the big boys to stop being picked on .
According to my husband who is probably biased I look more like 34 - 35 though most people seem surprised when I say how old I am thinking I am younger I was lucky and got my mums good skin I think
I have never seen a hamster what are they like? we have six cats, one dog, a rabbit, 1 guinea pig an assortmetn of tropical fish and soon there are to be ducks that does not include all the local wildlife such as kangas, emu, bob tail etc etc
Aaaaah snow what I wouldn't give for a truck load right at this moment or even a small iceberg okay thats it I am really off now lightening or not here I go
Hello Soulsearcher
QuietSoulSearcher Posted Feb 17, 2007
Hmm... a hamster. Have you met H2G2's hamster? They look much like that only in real life they are fluffier and cuter. Do these little animals not manifets themselves as pets down under? How would I describe a hamster? Let's take my baby Max. He's about 2 inches long, has a mixture of chestnutty brown fur which is short, soft and very silky. And Max is an absolute heartbreaker. Unusually for a hamster he has absolutely enormous big black eyes that you just sink into. They fit into the palm of your hand very easily. And he weighs about 4-5 onces, depending on the time of year. Have you ever seen a doormouse? He's very simillar to a doormouse only a bit bigger. And Max is my absolute baby, out of the rest of our little brood, he's a real mummy's boy.
Since I spoke to you last the weather has improved. We now have glorious sunshine and we have two new inhabitants which are staying with us for a while. Birdie and Cree, who are hooded rats and are here on a little rabatical, don't know if they are a permenant fixture yet, although is Max had his way they probably would be.
Hello Soulsearcher
hayayfi Posted Feb 18, 2007
Hello no no hamsters here though they sound very sweet, the closest we get to anything that even vaguely sounds like your hamster our our phasgoyles I think, so what have you been up to the past few weeks, how is your health
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QuietSoulSearcher Posted May 13, 2007
Know anything about miscarriages and what a total mind bleep bleep they are??????
Hello Soulsearcher
hayayfi Posted May 13, 2007
I have never had one myself but my sister in law and three friends have miscarried and I saw what they went through and how heart renching it was for them and those of us who loved them to loose children especially in the case of my sister in law who used ivf in order to get pregnant in the first place ...if you need informatioin or feel a need to talk outside a public forum my email is [email protected]
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- 1: hayayfi (Jan 19, 2007)
- 2: QuietSoulSearcher (Jan 20, 2007)
- 3: hayayfi (Jan 21, 2007)
- 4: QuietSoulSearcher (Jan 21, 2007)
- 5: hayayfi (Jan 21, 2007)
- 6: QuietSoulSearcher (Jan 22, 2007)
- 7: hayayfi (Jan 23, 2007)
- 8: QuietSoulSearcher (Jan 25, 2007)
- 9: hayayfi (Jan 25, 2007)
- 10: QuietSoulSearcher (Feb 17, 2007)
- 11: hayayfi (Feb 18, 2007)
- 12: QuietSoulSearcher (May 13, 2007)
- 13: hayayfi (May 13, 2007)
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