This is the Message Centre for Effers;England.
Z to Effers
Z Started conversation Apr 11, 2012
Hi Effers.
I just wanted to drop by and leave my good wishes.
I don't know if you'd be interested in discussing things with other people in a similar situation to yourself, but if you would here's a link to an online support forum for people with cancer.
http://community.macmillan.org.uk/
Best wishes
Z
Z to Effers
Effers;England. Posted Apr 11, 2012
Hi Z,
Thanks for the link...I'll have a think. I have a Macmillan nurse asigned..well several actually..a special chemo one and another for other stuff. Support for cancer patients really is pretty incredible....I have a superb GP and psychiatrist..and great hospitals in my area. Guys and Kings are like mini cities..the staff are fantastic and the decor now. Labour did a great job in their NHS investesment...well from my POV.
But yeah it's different if you are talking to others. I met a brilliant woman in the hospital with breast cancer..we have email contact...but I'm not sure.
It's an 'identity' thing...I just never thought of me and 'cancer' in the same sentance..Heart attack..or as Hoovooloo might say car crash but CANCER?
It helps now I started saying Big C
But I'm jesting a bit...the terror doesn't going away..now it's struck me like other mortals. I try to stay optimistic but know what might lie ahead. But I feel I couldn't get better treatment...
But thanks...I'll chat here now and then with you about things...maybe medical or whatever.
I the NHS..and all who sail in her.
Z to Effers
Effers;England. Posted Apr 11, 2012
I thought more and will probably leave the web site thing for now. I discovered over the last couple of months that you simply cannot beat real life at times of crisis.
That's a good thing to come out of this..it re-affirmed my trust and love for other real live people. I had been mentally unwell for about a year..cut myself off..stop taking the meds, now I'm fully back on the psycho meds..the hospital sorted that. It's a bloody relief to taste food again and enjoy the company of others that I get on with and who are warm and don't play games...I find too much of that on social network...frankly it sometimes depresses me a bit like a drug...
I'm hoping to meet some people at the chemo lounge...and that breast cancer woman and me had such a laugh. I met her towards the end..she has my humour and is also warm..
But thank you so much Z. I sense your support and it helps to mull a few things over with you. It's late at night now and I can get scared.
It's funny how unreal the news and politics now feels..and I realised its community we're evolved for..let others do all that stuff I'll do my bit on the small level...I know you do a heck of a lot in your job...and I saw you are fund raising with your 'run'.
Good on you.
Z to Effers
Z Posted Apr 14, 2012
No worries. I just wanted to let you know that I found it in case you like it. I am glad that you able to taste food again now and are interacting with people again.
I wish you all the best for your treatment, and hope that you are not hit too hard with the side effects. I know I am not around too much these days, but you do have my e mail address should you need it, and I will try to respond as soon as I can.
My run isn't going that well at the moment, I was busy with the Edinburgh Science Festival last week and was organising events until midnight every night, but I'm off out as soon as it stops raining.
Z to Effers
Effers;England. Posted Apr 17, 2012
It's really hitting me now. Went to Guys today for a few tests and this and that..Saw some quite scarily looking ill people in the waiting room today.
The ravages this disease can take on people are terrible.
I'm a skeleton myself at present..but its down to the op they say..but not as bad as those not very long for this world.
I can't be dealing with that. It'll Switzerland or a whack of morphine in a paradise hospice, if such a thing exists.
Chemo starts 3rd May..and regular consultations in between. I hope the nurses are as bright and humorous as those at Kings in the chemo place. Most people in the waiting room are much older than me..and I feel a bit fish out of water as a person..nothing new there..but when you're extra vulnerable it's more difficult.
Probably need to increase the psyche meds for a bit..am arranging to see psychiatrist.
I'm not coping well psychologically at present. My world has turned completely upside down. My identity has been knocked for six.
The Macmillan nurse isn't the brightest...I don't really fit the holistic needs form she gave me..and she doesn't quite understand why
Thanks for listening.
Z to Effers
Effers;England. Posted Jul 24, 2012
Hi Z. Have sent you an email to do with some advice about my treatment...your perspective outside the situation may help.
cheers.
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