A Conversation for Myalgic Encephalomyelitis (ME)
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Really?
abbi normal "Putting on the Ritz" with Dr Frankenstein Posted Dec 13, 2002
Life is NOT a contest. ALL deserve respect and NO body knows what another goes through. No bodies pain is relieved by by such talk. ME folks have heard those comments since day one. It is people like myself that allowed them to poke and prod for years (decade)to find links to *REAL disease. All the while listening to how the pateints are *mental as you say. The link HAS been made. It is an immunology problem. Parkinsons was *just a little shake* for decades,*untruth ,the Rev. will fortunately benefit from what others before him fought for. When problems are obvious , they are more likely to come to the forefront. We are so into looks--the hidden from view sufferers, take longer. All the more reason to make noise! Patients have brought about pressures to change and LOOK further. I would not wish any on others (except for those making a wrongful $ on suffering)but...Nothing works as well as the Dr. or his family having the *problems. I shake, all they'd say is well its NOT Parkinsons. well....STill Shake! Also remember many people have more than one diagnosis,its quite common, and confuses issues. NO disease defines us. We are ALL more than a disease label. I'd like to add that *Mental patients deserve respect too. Almost all patients are angry at some point(flucuates). I hope we can be a support to one another ,rather than a thorn. Stem cells and Gene therapy should help ALL of us eventually.
Really?
abbi normal "Putting on the Ritz" with Dr Frankenstein Posted Dec 14, 2002
It was in PRESENT tense when you remarked about a days work.
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