h2g2 The Hitchhiker's Guide to the Galaxy: Earth Edition

And just to unconfuse the newbies, this is kea posting from Albert's account

,and thank you!

*waves at Albert; whose cover has now been thoroughly blown!!!*

Yippee, new members! I always say "you can't have too many members; keep a few aside for a rainy day"

zdt

I have Muscular Dystrophy

Lord Wolfden

Fully paid up member then I would say!

We will get your name up in lights as soon as kea returns from her holidays!

Welcome to De Myelin Nation, do go & prowl around & comment wherever.

zdt

Thank you Terri

My name is Gavroche. I contracted GBS back in 1986. I mostly recovered, but there are some small lingering after effects.

Hello Gavroche

Sorry it's taken so long to reply. I was away over the summer (your winter). I see you haven't posted since then, but if you do come back I hope you get this message.

Thanks, got it.

Click the join button and you will be taken to a page to post to the
New Member thread. Leave your name and if you wish, a short comment re: the site in general, whether you personally are affected by de-myelinating conditions, know someone who is, or are interested in finding out more. You will then be added to the member's list on the front page of De Myelin Nation.

U780990

Hubby has MS

Thought I'd join in order to regale any anecdotes and possible help

magwitch

Welcome!

Thanks for coming and any help or questions or comments are greatly appreciated. The range of nuerological problems included has widened and any chronic illness help is appreciated.

Hubby and I find there is not a lot of emotional and practical support for the younger disabled caretakers as there is availble for elders. Not that I would take any away.

Hubby could sure use some support from time to time.
Positive support.

*Albert , the mascot,may be along soon to add you to the list
I am very pleased to see you here.
Thanks!

Gavroche and magwitch, I've added you to the lists Good to have you both on board.

kea.

I'll add Lord Wolfden too, even though he's not here anymore.

If there's anyone else I've missed, get Terri to come after me with the big stick.

prof gawid,

Sorry, I missed you too I thought you were telling Gavroche how to join, but I just realised that you have used the join box on the DMN page and that's what is in your post

Would you like me to add you to the members or the family/friends list?

I'll go and fix that box now...

kea here, testing the new join button

Hiya Kea! Yes, please do add Lord Wolfden, i am in daily email contact with him & i'm sure he'd be pleased to think he's gone, but not forgotten!

Welcome to the newbies!Have some

There was a lady posted not long back about her distress over fibromyalgia & the devastating effect on her marriage. I left her a message, but no reply so far.

zdt

Yep, added Wolfie. I had missed that, my apologies to him. I know he had a hard time elsewhere on the site, but none of that counts here in DMN land, so I wish I'd seen his name at the time.

I will email him tomorrow with the link, he will be happy about that!

zdt

hi there i was just reading the article on m.e. i found it pretty accurate.
iv'e had m.e since 1991 and it took me 6 months to find out what was wriong with me. i still suffer from reoccuring symptoms. when i am floored for days.
i have learned to live with this condition to the best i can. speaking to people who have, or have had this illness helps as you do not feel as if you are going insane.
i find that aromatherapy helps especially grapefruit oil.
it's just one of those things that you have to make the best of and try to tolerate. my friends and relationships have been really understanding. people are understanding m.e better now this day and age, back in the 90,s it was still unknown and classed as a psycological illness.

i make the best out my situation but i'll never be able to run a marathon haha !!!!!