A Conversation for Ask h2g2
PD
clzoomer Started conversation Sep 11, 2014
Why am I a bit wobbly? Glad you asked. I was diagnosed with Parkinson's Disease six months ago. Anybody else on this big adventure?
PD
Pink Paisley Posted Sep 11, 2014
Best wishes to you CL.
Parkinsons is one of those diseases that I have never encountered in my family or circle of friends.
I hope it's progress is slow.
PP.
PD
Phoenician Trader Posted Sep 11, 2014
I had a very good friend with moderately advanced Parkinsons who had the best lover ever. He was all she could ask for. It was hard but life was still fabulous.
They are still doing brilliantly, but I have moved away.
I really hope you never get it that tough, but also that the people around you are as wonderful as those around her.
PD
clzoomer Posted Sep 12, 2014
Thank you both, progress is slow, Stage One now and probably years before I get to Stage Five. L-Dopa is brilliant and yes, it does have the side effect of increased libido.
PD
clzoomer Posted Sep 12, 2014
BTW, if you want a fairly good explanation of Stage one, try the film 'Love and Other Drugs'
http://www.imdb.com/title/tt0758752/
PD
paulh, vaccinated against the Omigod Variant Posted Sep 13, 2014
"Love and Other Drugs" includes a scene where Parkinsons patients get up and talk about the challenges they face in their lives. Many of them do it with grit and good humor. I found the scene to be quite inspiring.
PD
You can call me TC Posted Sep 16, 2014
I've been hearing a lot about the deep brain surgery (or whatever it's called) as a surefire cure for Parkinsons. It sounds very radical and may be still in the experimental stage, but may be worth seeking out in a few years' time, if and when it establishes itself and becomes a routine treatment.
Good luck with everything.
PD
clzoomer Posted Sep 19, 2014
Yes it is ab option but one of last resort as far as I can tell. Lots and lots of online stuff, though.
PD
paulh, vaccinated against the Omigod Variant Posted Sep 19, 2014
That's news to me. I didn't know there was *anything* that could be a surefire cure.
PD
clzoomer Posted Sep 20, 2014
'Surefire' never is with anything I suppose, but it does sound promising. There are EU tests going on for a vaccine right now as well. Fingers crossed.
PD
paulh, vaccinated against the Omigod Variant Posted Sep 21, 2014
Does lobotomy fall in there somewhere?
PD
You can call me TC Posted Sep 22, 2014
No, I think they place a kind of needle at a certain point and it makes an immediate difference. The patient is conscious during the process and notices it immediately. This obviously needs more research, but it seems to have worked on some people already.
So nothing is removed, it's just that electrical stimulus re-organise the synapses (in layman's terms, that is, before someone comes along with the brain surgeons's version of what happens)
Please excuse if this gets posted twice - connection went wonky. Crikey, if they can't get that right, I'm not sure I would want to have my brain fiddled with.
PD
Bald Bloke Posted Sep 22, 2014
There was a TV documentary about that, I think it might have been about the first patient to have that sort of "Open Skull" treatment it was a long time ago and I don't remember which channel.
Key: Complain about this post
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- 1: clzoomer (Sep 11, 2014)
- 2: Pink Paisley (Sep 11, 2014)
- 3: Phoenician Trader (Sep 11, 2014)
- 4: clzoomer (Sep 12, 2014)
- 5: clzoomer (Sep 12, 2014)
- 6: paulh, vaccinated against the Omigod Variant (Sep 13, 2014)
- 7: clzoomer (Sep 14, 2014)
- 8: ~ jwf ~ scribblo ergo sum (Sep 15, 2014)
- 9: You can call me TC (Sep 16, 2014)
- 10: clzoomer (Sep 19, 2014)
- 11: paulh, vaccinated against the Omigod Variant (Sep 19, 2014)
- 12: clzoomer (Sep 20, 2014)
- 13: Phoenician Trader (Sep 21, 2014)
- 14: paulh, vaccinated against the Omigod Variant (Sep 21, 2014)
- 15: You can call me TC (Sep 22, 2014)
- 16: Bald Bloke (Sep 22, 2014)
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